Lupus Research Alliance News
Lupus ABC First Anniversary Meeting Celebrated Remarkable Year of Accomplishments

Progress Shared and Future Course Charted The Lupus Research Alliance (LRA) is pleased to report that the Lupus Accelerating Breakthroughs Consortium (Lupus ABC) held its second annual meeting in April in Bethesda, Maryland to share its substantial progress over the first year and chart future directions. Lupus ABC is a first-of-its-kind public-private partnership, uniting individuals […] READ MORE

Dan the Man Shares his M’s and C’s to Improve Your Lupus Journey

Known around lupus circles as Dan the Man, Nandan (Dan) Baruah is an advocate for all people with lupus.  But he is especially focused on helping other men living with what is often considered a women’s disease. As Dan reflects on Men’s Health Month and Father’s Day, he has much to share about coping as […] READ MORE

Statement from the Lupus Research Alliance Related to Halsey’s Lupus Announcement

June 5, 2024 The Lupus Research Alliance (LRA) expresses deep appreciation to the renowned singer and songwriter Halsey on sharing two powerful Instagram posts (June 4 and June 5) about their diagnosis of systemic lupus erythematosus (SLE) and a rare T-cell lymphoproliferative disorder. Halsey released yesterday on Instagram a new song, The End, expressing their challenges and tagging […] READ MORE

Lupus Awareness Month Celebrated Community with Promise and Hope

May 31, 2024 For centuries writers have described May as a time budding with promise. How apt that it is also when the world recognizes Lupus Awareness Month. With 31 days of May behind us, we celebrate the community that has banded together to make a difference. We appreciate all your amazing contributions throughout the […] READ MORE

Lupus Research Alliance Grants Lupus Innovation Awards to Nine International Researchers Pushing the Boundaries of Lupus Research

New York, NY, May 23. The Lupus Research Alliance (LRA) is proud to announce that nine international researchers are the recipients of this year’s Lupus Innovation Award (LIA). They will conduct innovative research to uncover the underlying mechanisms and identify novel targets and pathways that could be harnessed to predict, monitor, and treat lupus, a […] READ MORE

All the World’s Your Stage During Lupus Awareness Month

May 9, 2024 Molly McCabe was going to be an opera star, using the gift of a beautiful voice to inspire audiences around the globe. That was before lupus attacked and focused most on the organ that makes singing possible– her lungs. So began two years of feeling sorry for herself, spending her time on […] READ MORE

A Message from LRA President Introducing LRA’s celebration of Lupus Awareness Month

Dear Friends, Lupus Awareness Month officially starts today, and with so many advancements, never has there been a time for more optimism. We are delighted to begin May following a productive first-anniversary meeting of the Lupus Accelerating Breakthroughs Consortium (Lupus ABC) where people with lupus partner with representatives from the FDA, industry, and researchers on […] READ MORE

Expert Global Task Force Issues Recommendations for Physical Activity and Exercise in People with SLE

April 15, 2024 An international task force recently published their recommendations for physical activity and exercise in people with systemic lupus erythematosus (SLE). While the benefit of physical activity in lupus is already recognized, no recommendations had been previously established. Published in the peer-reviewed journal Rheumatic & Musculoskeletal Diseases, this study outlines specific recommendations for […] READ MORE

Lupus Accelerating Breakthroughs Consortium Announces Expanded Partnership with U.S. FDA at First Anniversary Meeting

BETHESDA, MD – [April 16] The Lupus Research Alliance (LRA), founder and administrator of the Lupus Accelerating Breakthroughs Consortium (Lupus ABC), announced today at the Consortium’s first anniversary meeting an expanded partnership with the U.S. Food and Drug Administration (FDA) with the inclusion of the Center for Biologics Evaluation and Research (CBER). The addition of […] READ MORE

LRA Announces Partners on the First Anniversary of the Lupus Landmark Study

April 11, 2024 The Lupus Research Alliance (LRA) and its clinical research affiliate Lupus Therapeutics (LT) are pleased to announce the group of industry partners working together on the implementation of the Lupus Nexus. The Lupus Nexus, one of LRA’s most ambitious and groundbreaking endeavors, is a first-of-its-kind lupus registry, biorepository, and data exchange platform […] READ MORE

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