Lupus Research Alliance News
LRA Advocates Make the Difference

June 29, 2021 Today the House Appropriations Committee released the bill that funds the U.S. Food and Drug Administration (FDA). The bill’s accompanying report, which expresses Congressional intent for the use of the funding, includes this language regarding lupus drug development, which the Lupus Research Alliance advocated for along with our lupus patient advocates: Lupus […] READ MORE

Men and Lupus: What to Know

June 24, 2021 Men’s Health Month is the time to remind ourselves or the men in our lives to take stock of their physical and emotional wellbeing.  Paying attention to symptoms you might rather ignore is the intent behind recognizing this month. While 90% of people with lupus are female, 10% are males – the […] READ MORE

Living with a Disease No One’s Heard Of

June 24, 2021 For Men’s Health Month, we spoke to several men about their experience living with what is commonly thought of as a woman’s disease and one that too few people are familiar with. Many told us that they find people’s lack of knowledge about lupus extremely frustrating and are determined to educate others. […] READ MORE

How Men Can Cope with a Chronic Disease Like Lupus

June 24, 2021 Men often hear messages from society that can discourage expressing symptoms or concerns about health issues.  One man we interviewed, Derek Bennett, spoke particularly powerfully about how this cultural pressure affected his being able to cope with the effects of lupus on his life. And Priscilla Toral, LCSW from Hospital for Special […] READ MORE

What Makes a Great Dad to a Child with Lupus?

June 17, 2021 For Men’s Health Month and Father’s Day, we spoke with Clark Brigger about what it takes to be a great dad to a child with a chronic illness, and his 26-year-old son Erik,a young man with lupus.  The answer – to share your personal strengths and do not strive for perfection. Erik […] READ MORE

Two New Drugs Receive FDA Approval

May 1, 2021 “This is a historic moment in lupus with two new drug approvals for lupus nephritis just over a month,” enthused Kenneth M. Farber, LRA President and CEO. The LRA is excited to share that the U.S. Food and Drug Administration (FDA) has approved the use of voclosporin (Lupkynis™) as the first oral […] READ MORE

Bolstering Diversity To Accelerate Research and Systemic Change

May 1, 2021 As an organization, the LRA is committed to promoting diversity, equity, and inclusion in all our work—not only because it is the right thing to do, but because lupus is a disease that disproportionately impacts people of color—particularly women. While it has been long established that 90 percent of those with lupus […] READ MORE

The Power of Advocacy

May 1, 2021 Ten new grant applications for promising lupus research have been recommended for funding under the Lupus Research Program within the Congressionally Directed Medical Research Programs at the Department of Defense! The LRA and advocates across the country helped establish this vital program which has been allocated $35 million in its first five […] READ MORE

COVID-19 Vaccines and the Lupus Community

May 1, 2021 The United States is in the midst of the biggest, fastest, most important vaccination campaign ever undertaken in our nation’s history. As of April 2021, more than 180 million doses have been given—with over 2.5 million doses being administered every day. Over the past year, the development of vaccines—and getting them in […] READ MORE

Men’s Health Month: Enrico Costabile Turns Anger into Action

June 9, 2021 Enrico Costabile is sharing his story during Men’s Health Month to encourage others to avoid avoidance. “It’s better to ask and rule it out than to let it go untreated for too long. As men, we normally shrug symptoms off, but with lupus it can be a life-or-death situation like it nearly was for me. Get checked […] READ MORE

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