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Privacy Policy

The Lupus Research Alliance created this Privacy Policy to explain what information we collect and how we will protect your personal privacy within our Web site. The following discloses our information gathering and dissemination practices for the Web site located at the URL www.lupusresearch.org.


In order to fully understand your rights we encourage you to read this Privacy Policy. The Lupus Research Alliance reserves the right at any time and without notice to change this Privacy Policy simply by posting such changes on our Site. Any such change will be effective immediately upon posting.

Questions regarding this statement should be directed to the Lupus Research Alliance by sending an e-mail to info@lupusresearch.org. Please reference this Privacy Policy in your subject line.

The Lupus Research Alliance respects your privacy. Thus, as a general matter, you can visit the Site without revealing any personal information. Like many websites, our web servers collect the Internet Protocol (IP) addresses, but not the e-mail addresses of its users. This information provides us with useful information about the performance of and ways to improve the Site. We use IP addresses to help diagnose problems with our server, administer our Site, analyze trends, track users’ movement, gather broad demographic information for aggregate use in order for us to improve the site, and deliver customized, personalized content. IP addresses are not linked to personally identifiable information.

In addition, in order to provide certain services to you, you may be asked to provide information that identifies you, including, for example, your name, contact information, and e-mail address (collectively, “Personal Information”). We collect and retain your Personal Information for our own internal purposes in connection with facilitating any requests, communications, or interactions you may have with our Site or The Lupus Research Alliance. We do not share, trade, or sell your information to anyone outside of The Lupus Research Alliance at any time, unless required to so by court order or otherwise under applicable laws. Again, you are not required to share Personal Information with the The Lupus Research Alliance in order to use our website.


The Lupus Research Alliance goes to great lengths to protect the confidentiality and integrity of any Personal Information you share with us over the Internet. We treat personal data such as credit card information as critical assets that must be guarded at all times against loss and unauthorized access. To ensure the security of credit card and personal information, this Web site employs industry-standard security methods.

All information provided to the Lupus Research Alliance is transmitted using SSL (Secure Socket Layer) encryption. SSL is a proven coding system that lets your browser automatically encrypt, or scramble, data before you send it to us. We also protect account information by placing it on a secure portion of our Site that is only accessible by certain qualified employees of the Lupus Research Alliance. Unfortunately, however, no data transmission over the Internet is 100% secure. While we strive to protect your information, we cannot ensure or warrant the security of such information.

Other Web Sites:

Our Site contains links to other Web sites. Please note that when you click on one of these links, you are entering another Web site for which the Lupus Research Alliance has no responsibility. We encourage you to read the privacy statements on all such sites as their policies may be different than ours.

Contacting the Web Site:

If you have any questions about this Privacy Policy, the practices of this Site, or your dealings with this Site, you can contact:

Lupus Research Alliance
275 Madison Ave., 10th Flr
New York, NY 10016

You can also send an e-mail to: info@lupusresearch.org


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