The Lupus Research Alliance (LRA) and its affiliate Lupus Therapeutics (LT) are developing – in close collaboration with the academic, industry and patient communities – an unparalleled patient registry and biorepository coupled with data sharing and analysis platform. This unique infrastructure, the Lupus Nexus (LNx), will provide prospective, longitudinal, well-phenotyped data, patient-reported data, and linked biosamples from over 3,500 lupus patients. Recruitment of patients will be conducted through 24 of LT’s Lupus Clinical Investigators Network (LuCIN) sites, with enrollment beginning in mid-2023.
The vision for the Lupus Nexus is to transform lupus research and drug development through unprecedented information exchange capabilities. The platform will provide a collaborative solution that is inclusive of diverse patient populations disproportionally affected by lupus. The Lupus Nexus will be a source of highly curated data to catalyze global collaboration, research innovation, and precision medicine approaches to accelerate lupus research and drug development.
For more information, please contact the Lupus Nexus team at LupusNexus@lupusresearch.org.
Lupus Therapeutics, a fully owned affiliate of the Lupus Research Alliance, manages the Lupus Research Alliance-supported Lupus Clinical Investigators Network (LuCIN) and works with industry, academia and patients to accelerate lupus research and translation.
- NIH: National Institutes of Health
- NHLBI: National Heart, Lung, and Blood Institute
- NIAID: National Institute of Allergy and Infectious Diseases
- NIAMS: National Institute of Arthritis and Musculoskeletal and Skin Diseases
- NICHD: National Institute of Child Health and Human Development
- NIDDK: National Institute of Diabetes and Digestive and Kidney Diseases
- NIEHS: National Institute of Environmental Health Sciences
- NIGMS: National Institute of General Medical Scientists
- NIMHD: National Institute on Minority Health and Health Disparities
- NINDS: National Institute of Neurological Disorders and Stroke
- DOD: Department of Defense Congressionally Directed Medical Research Programs (CDMRP) Lupus Research Program
- CDC: Centers for Disease Control and Prevention
- VA: U.S. Department of Veterans Affairs
British Society for Rheumatology Annual Conference
April 24-26, 2023
Manchester, UK
IMMUNOLOGY2023™
May 11-15, 2023
Washington, DC
Lupus & KCR 2023
May 17-23, 2023
Seoul, South Korea
Clinical Immunology Society 2023 Annual Meeting
May 18-21, 2023
St. Louis, MO
EULAR 2023 Congress
May 31 – June 3, 2023
Milan, Italy
35th Annual CSI Conference
June 6-9, 2023
Quebec, Canada
FOCIS 2023 Annual Meeting
June 20-23, 2023
Boston, MA
The Autoimmunity Conference
July 30-August 3, 2023
Southbridge, MA
39th Scandinavian Congress of Rheumatology
August 23-26, 2023
Copenhagen, Denmark
Lupus 21st Century
September 27-30, 2023
Naples, FL
Cytokines 2023: 11th Annual Meeting of the International Cytokine & Interferon Society
October 15-18, 2023
Athens, Greece
ACR Convergence 2023
November 2023
British Society for Immunology Congress 2023
December 4-7, 2023
Belfast, Northern Ireland
ASI 2023
December 4-8, 2023
Auckland, New Zealand
25th Asia-Pacific League of Associations for Rheumatology Congress
December 7-11, 2023
Chiang Mei, Thailand
17th Annual Rheumatology Winter Clinical Symposium
February 14-17, 2024
Maui, HI
American Academy of Allergy, Asthma & Immunology Annual Meeting
February 23-26, 2024
Washington, DC
14th European Lupus Meeting
March 2024
Bruges, Belgium