If you are living with lupus, we need your support to continue our research in personalized treatments and work toward cures. From participating in clinical trials to sharing your story, there are multiple ways to help us advance research.
The Lupus Research Alliance is the world’s largest nongovernment funder of lupus research, with 100% of donations going to research programs. But the answers lie within you, and together we will find the cure.
Learn About Participating in Clinical Trials
The years 2020 and 2021 have delivered major advancements in lupus treatments approved by the U.S. Food and Drug Administration (FDA), but we need more treatments. Researchers are studying dozens of potential treatment options in controlled clinical trials, and we need participation from a broad range of people living with lupus. Diversity in demographics and how each individual patient’s lupus manifests are essential to ensure our research is rigorous and representative of the entire lupus community.
Below are just some of the ways you can help to support and participate in research.
The Lupus Brain Bank
Up to 95% of people with lupus experience neuropsychiatric lupus (NPSLE), which includes a wide range of neurologic symptoms — symptoms like not thinking clearly; forgetting things; or even seizures, stroke and psychosis. To gain a deeper understanding of what’s going on in the brain, it’s critical to look at human brain tissue. The Lupus Research Alliance has worked with the Harvard Brain Tissue Resource Center (HBTRC) to develop a program to recover donated brains from deceased individuals with lupus.