July 1, 2024 — Last week, the U.S. House of Representatives passed the Fiscal Year 2025 Defense Appropriations bill. This bill includes $10 million for the Lupus Research Program, which awards grants to promising researchers around the world seeking to improve therapeutics and hopefully discover a cure for lupus. This is the same funding level […] READ MORE
March 24, 2024 Congress and passed and President Biden signed the 2024 spending bills, which include priorities that you, our advocates requested last March. The Defense Appropriations bill includes $10 million for the Lupus Research Program within the Department of Defense. And the Agriculture-FDA bill includes a provision expressing support for FDA’s engagement with industry […] READ MORE
February 28, 2023 The Lupus Research Program (LRP) within the Department of Defense that you, our community, advocated to create, has recommended to fund 12 new applications for promising scientific studies to improve treatment for lupus. The dedicated Lupus Research Program was first established in 2017 under the Congressionally Directed Medical Research Programs operated by […] READ MORE
The Lupus Research Alliance and Lupus Therapeutics support diversity in clinical trials to ensure that populations that test potential treatments reflect the population with the disease. LRA joined 42 other members of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Coalition in sending a letter to Congresswoman Robin L. Kelly in support […] READ MORE
January 6, 2023 With the help of our advocates throughout the year, 2022 was a year of great action and accomplishment. The budget for 2023 that Congress passed at year-end includes some very important funding and recognition for lupus: $10 Million for the Lupus Research Program – A longstanding priority for Lupus Research Alliance has been […] READ MORE
November 10, 2022 As you probably know, the LRA and our advocates were highly instrumental in creating the Department of Defense Lupus Research Program in 2017 and in increasing its budget over the years since. We are working to increase LRP funding even more to $15 million – and this is the time to make […] READ MORE
March 15, 2022 Each year, Congress must allocate funds for the following year’s budget, and every year, we lead the advocacy effort for the additional funding needed for lupus research to produce better treatments and eliminate racial disparities in healthcare. Last March lupus advocates joined the LRA to submit formal Congressional Asks for Fiscal Year […] READ MORE
April 11, 2022 Please join the Lupus Research Alliance in asking your legislator in the U.S. House of Representatives to sign the “Dear Colleague” letter circulated by leaders of the Congressional Lupus Caucus. Any member of the House can sign onto this letter to show their support for funding federal lupus research programs. This letter […] READ MORE
March 21, 2022 Twelve new applications for promising scientific studies were just recommended for funding by the Lupus Research Program (LRP) within the Department of Defense! The dedicated Lupus Research Program was first established in 2017 under the Congressionally Directed Medical Research Programs operated by the Army Medical Research and Materiel Command in Ft. Detrick, […] READ MORE
November 1, 2021 The Lupus Research Alliance (LRA) responded to a Request for Information from the National Institutes of Health’s (NIH) Office of Research on Women’s Health (ORWH) and the Advisory Committee on Research on Women’s Health (ACRWH) as they prepared for an October 2021 conference on advancing women’s health research. Our letter focused on […] READ MORE
November 1, 2021 The Lupus Research Alliance (LRA) responded to a request from U.S. Representatives Diana DeGette and Fred Upton to share input on issues related to the proposed establishment of a new agency, the Advanced Research Projects Agency for Health (ARPA-H). Our letter emphasizes that while we recognize the value of research that is not targeted […] READ MORE
July 31, 2020 In early July we alerted you that the Fiscal Year (FY) 2021 Defense Appropriations Bill was publicly announced with $10 million appropriated for the Lupus Research Program at the Department of Defense. We are thrilled to announce that the House of Representatives today passed this Bill! The many, many phone calls and […] READ MORE
