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Amanda Greene Advises on Talking About Your Lupus

There are few things that a person living with lupus can control.  The how and when we share our healthcare journey with others is one that we as people living with lupus do have control over.  Each person living with lupus is unique and after 36 years as a lupus patient, I believe that some […] READ MORE

Sheena M. Ogando, MD, RhMSUS, RYS200

Hello my precious Lupus-ees! My name is Sheena Ogando, I’m a born and raised New Yorker, part-time yoga instructor, and full-time rheumatologist working in California.  I have worked with the Lupus Research Alliance since 2015 and am coming home to New York for the 2018 NYC Marathon, running for the organization’s Team Life Without Lupus.  […] READ MORE

Advancing Research Exponentially

August 14, 2018 Advancing Research Exponentially An Update on AMP by Jill Buyon, MD Lupus nephritis (LN), one of the dreaded complications of lupus, causes patients to suffer, sometimes for decades, with no new treatment in sight. But now is the time to leverage technology for major advances, which is exactly what the Accelerating Medicines […] READ MORE

Albert T. Roy, Executive Director Lupus Therapeutics, LLC

I’m writing this blog because the Lupus Research Alliance, and its affiliate, Lupus Therapeutics is determined to drive discovery and development of new treatments for lupus! I am proud to serve as Executive Director of Lupus Therapeutics, which serves as fiscal and administrative agent of the Lupus Clinical Investigators Network (LuCIN), a network of 57 […] READ MORE

Sisters Share their Story of Living with Lupus, as a Patient and Caregiver

Juana and Estela Mata Share their Story of Living with Lupus, as a Patient and Caregiver From one day to another you can start getting debilitating symptoms, aches, pains, organ involvement and the next thing you know you have a lifelong chronic illness, Lupus. Immediately you are scared because you don’t know what to expect, […] READ MORE

It’s World Lupus Awareness Day

It’s World Lupus Awareness Day – when our community comes together to recognize and energize people battling lupus around the globe while educating and motivating others to lend their support. What better day to join our new community Forum – a place to unite with YOUR community – people who are facing the same struggles. […] READ MORE

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