January 18, 2024 Brittany Morris was supposed to be a professional athlete. As a child, she was one of her community’s fastest track stars, a sprinter with big plans to compete as a pro-runner, at least with a scholarship to join a college team. But suddenly at 12 years old she developed confusing symptoms that […] READ MORE
January 2, 2024 The national lupus community lost a passionate advocate with the passing of former Congresswoman Eddie Bernice Johnson (D-TX). As many have shared, Congresswoman Johnson was a woman of significant “firsts” – first Black head psychiatric nurse at the Dallas VA hospital, first nurse elected to Congress, first African American and first woman […] READ MORE
December, 2023 Participating in the LRA’s Lupus Landmark Study was a “no-brainer” says Angelica Perez, a 37-year-old woman living with lupus since she was nine. “I had been taking part in clinical trials for years to potentially improve my own care while helping to advance new treatments overall.” A patient of renowned Los Angeles lupus […] READ MORE
Dec. 1, 2023 A new paper published in Lupus Science & Medicine on the results of a study in China reported that a potential treatment telitacicept demonstrated favorable effectiveness and safety in patients with active SLE. It also improved effects of lupus on kidneys and the blood. Telitacicept is conditionally approved in China as a […] READ MORE
November, 2023 At the recent ACR Convergence 2023, the annual meeting of the American College of Rheumatology, important lupus clinical trial data and breakthrough foundational research were presented. Following are highlights of work funded by the Lupus Research Alliance or supported in partnership with industry through our clinical affiliate Lupus Therapeutics. CAR-T Cell Therapy is […] READ MORE
New York, NY. November 21, 2023 – This year’s Lupus Research Alliance (LRA) Breaking Through Gala raised $2 million for lupus research and brought the hope of tremendous progress that’s improving lupus treatment while driving to a cure. The annual celebration began with a powerhouse performance and moving tribute to lupus warriors by multi-talented pianist, […] READ MORE
November 14, 2023 Shanna Garcia’s Native American heritage as a Lipan Apache descendant dates back to the 1800’s when her family protected their tribal lands alongside the famous warrior Geronimo. Now her fight to resist the effects of lupus on herself and her people is just as fierce and passionate. In honor of Native American […] READ MORE
November 7, 2023 This October, the Lupus Research Alliance (LRA) held its annual scientific conference, Forum for Discovery, in New York City. This event serves as a pivotal gathering where LRA-funded researchers from across the globe convene to share their recent breakthroughs. Forum for Discovery serves as a catalyst, fostering interactions upon which further groundbreaking […] READ MORE
November 6, 2023 The New York City Marathon brings together 30,000 professional and amateur runners from around the world to NYC who have trained long hours to prepare for this iconic international event. For Laura Haley, Sarah Edwards, and Molly Supple, from Arizona, Oregon, and Spain, respectively, who met in college and bonded through running, […] READ MORE
This information is brought to you by the Lupus Research Alliance and Lupus Therapeutics and is not sponsored by, nor a part of, the American College of Rheumatology. 30+ presentations of studies funded by the LRA spanning a broad spectrum of research areas Positive results from Phase 2/3 clinical studies supported by LRA affiliate Lupus Therapeutics point to […] READ MORE
Are you, a family member or friend employed by the Federal Government? Anyone who is a current or retired federal, postal, or military employee can support the Lupus Research Alliance by making a pledge through the 2024 Combined Federal Campaign (CFC). Conveying how giving makes both recipients and donors feel, this year’s CFC campaign called […] READ MORE
NEW YORK, NY. Oct. 26, 2023. Lupus Therapeutics, the clinical research affiliate of the Lupus Research Alliance, is proud to share that the successful results of the Patient Advocates for Lupus Studies (PALS) pilot study were recently published in ACR Open Rheumatology , the official open-access journal of the American College of Rheumatology. The PALS (Patient […] READ MORE
