Lupus Research Alliance News
Congratulations to Our Scientific Advisory Board Co-Chair for Highest ACR Honor

Congratulations to our Scientific Advisory Board Co-Chair, Mary K. Crow, MD, for receiving the 2018 Presidential Gold Medal presented by the American College of Rheumatology (ACR) during their Annual Meeting in Chicago. Dr. Crow is Physician-in-Chief at Hospital for Special Surgery (HSS), and Chief of Rheumatology at Weill Cornell Medicine and New York Presbyterian Hospital/Cornell Medical […] READ MORE

Taking Care of Yourself as You Grow Up with Lupus

We are excited to participate in a new program at the American College of Rheumatology meeting this year – co-authoring a presentation in the Patient Perspectives session. Diane Gross, National Director of Advocacy and Programs worked with Denita Perry, a young woman living with lupus since her childhood to create a poster presentation called “Learning […] READ MORE

Our CFO Quoted in Article on Giving

The Lupus Research Alliance Chief Financial Officer Debra Rose is quoted in an article in Consumers Advocate about nonprofits  gaining accreditation by impartial organizations such as the BBB Wise Giving Alliance (WGA). BBB Wise Giving Alliance “is dedicated to evaluating national charities and reporting on their practices. Just as the Better Business Bureau focuses on consumer protection […] READ MORE

LRA Distinguished Innovator Wins 2019 Breakthrough Prize

Winner of our most substantial grant, the Dr. William E. Paul Distinguished Innovator Awards in Lupus and Autoimmunity, Dr. Zhijian “James” Chen, Professor of Molecular Biology at UT Southwestern, just gained another prestigious award for that work from the Breakthrough Prize Foundation.  He also recently received the 2018 Lurie Prize in Biomedical Sciences from the Foundation for the National Institutes of […] READ MORE

Celebrating Lupus Awareness Month

    “For us, raising awareness about this awful disease isn’t limited to May. All year long, we are engaged in delivering discoveries that can transform lives. Because that is where real hope begins.” Kenneth M. Farber, President and CEO Lupus gained the attention it deserves throughout the month of May! Millions of people throughout […] READ MORE

Serving Under-served Lupus Communities

The Lupus Research Alliance’s Multi-cultural Outreach Task Force is out in full force to raise awareness among the African American communities, who face a higher risk of developing the disease, at health expos around the country, including the Essence Music Festival in New Orleans, LA this summer and Healthy Churches 2020 National Conference hosted by […] READ MORE

Lupus Patient-Focused Drug Development Meeting

The Lupus Research Alliance collaborated with the Lupus and Allied Diseases Association and the Lupus Foundation of America on a groundbreaking initiative in cooperation with the Food and Drug Administration’s (FDA) externally-led Patient-Focused Drug Development (PFDD) program. The well-attended meeting hosted by the three groups supplemented by a national survey of people with lupus resulted […] READ MORE

Patient Involvement: The Next Critical Step

Certainly, advocacy is absolutely necessary to generate funding for the National Institutes of Health (NIH) and other federal organizations, as well as for groups that support and conduct lupus research. But patient involvement is also critical to opening pathways to discovery. “Just helping to raise money isn’t enough,” said Diane Gross, National Director of Advocacy and […] READ MORE

Advocacy on the Personal Level

“Advocacy has many forms, including taking action for one’s own health. It’s self-advocacy  — even though many would not think of their actions this way,” explains Diane Gross, National Director of Advocacy and Programs at the Lupus Research Alliance. “When patients hear that their insurance company is not going to pay for a medication and then […] READ MORE

Advocacy: The Critical First Step

Advocacy can mean different things to different people. Some seek to make changes in policy and funding at state and federal levels by helping Congress and government agencies better understand what it means to live with lupus. For others, advocacy is a way to take action with respect to their own health. Regardless of the […] READ MORE

Lupus Research Alliance Awards Grants to Six Trailblazing Studies

2018 Awards Enable Promising Scientists to Bring Innovative Approaches to Lupus Research October 18, 2018 The Lupus Research Alliance announced six new Novel Research Grants to support paradigm-changing lupus research. To conquer the complexity of lupus, the Novel Research Grants support researchers who study lupus from many perspectives, testing new theories about what causes lupus and […] READ MORE

Lupus Kidneys Copy Tumors’ Tactic to Protect Themselves

October 4, 2018 Abnormal immune cells invade the kidneys in patients with lupus and can damage the organs so severely that they stop working. But the kidneys defend themselves from these attacks by disabling these rogue cells, according to a new study from two scientists funded by the Lupus Research Alliance. Cancerous tumors similarly protect […] READ MORE

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