Researchers are trying to ascertain the important issue in SLE of how much improvement in disease activity patients must show to decrease the long-term rate of organ damage. Four studies presented at ACR by Drs. Eric Morand and Michelle Petri addressed that important question. Favorable Results for “Easier” Remission Target Three studies by Distinguished Innovator […] READ MORE
The Lupus Research Alliance is one of the sponsors of the Accelerating Medicines Partnership in Rheumatoid Arthritis and Lupus (AMP RA/Lupus), a public-private partnership between the National Institutes of Health, the U.S. Food and Drug Administration and several pharmaceutical companies and nonprofit organizations. . AMP aims to speed the development of new therapies, and we […] READ MORE
More than 70 researchers who have received funding from the Lupus Research Alliance contributed to the scientific dialogue on lupus at the ACR|ARHP meeting this year. Following are highlights of specific discoveries the organization has supported: Tiring Out Rogue Cells Learning from cancer research, a team of scientists led by the inaugural Lupus Insight Prize […] READ MORE
The Lupus Research Alliance was on the ground at the American College of Rheumatology 2018 meeting to bring you the latest news in lupus research and translation. Several clinical trials showed benefits of potential new treatments for helping people with lupus. Following are summaries of the stand-out results: Ustekinumab (Stelara®) A Phase 2 controlled study compared […] READ MORE
Our Research Director, Dr. Teodora Staeva, presented at the “Meet the Funders: NIH & Foundation Roundtable Grant Discussion” October 22 at the American College of Rheumatology (ACR) annual meeting. Dr. Staeva spoke about the Lupus Research Alliance many grant programs available to scientists including the Target Identification in Lupus, Novel Research Grant, Analysis of Lupus Patient-Focused Drug Development […] READ MORE
Congratulations to our Scientific Advisory Board Co-Chair, Mary K. Crow, MD, for receiving the 2018 Presidential Gold Medal presented by the American College of Rheumatology (ACR) during their Annual Meeting in Chicago. Dr. Crow is Physician-in-Chief at Hospital for Special Surgery (HSS), and Chief of Rheumatology at Weill Cornell Medicine and New York Presbyterian Hospital/Cornell Medical […] READ MORE
We are excited to participate in a new program at the American College of Rheumatology meeting this year – co-authoring a presentation in the Patient Perspectives session. Diane Gross, National Director of Advocacy and Programs worked with Denita Perry, a young woman living with lupus since her childhood to create a poster presentation called “Learning […] READ MORE
The Lupus Research Alliance Chief Financial Officer Debra Rose is quoted in an article in Consumers Advocate about nonprofits gaining accreditation by impartial organizations such as the BBB Wise Giving Alliance (WGA). BBB Wise Giving Alliance “is dedicated to evaluating national charities and reporting on their practices. Just as the Better Business Bureau focuses on consumer protection […] READ MORE
Winner of our most substantial grant, the Dr. William E. Paul Distinguished Innovator Awards in Lupus and Autoimmunity, Dr. Zhijian “James” Chen, Professor of Molecular Biology at UT Southwestern, just gained another prestigious award for that work from the Breakthrough Prize Foundation. He also recently received the 2018 Lurie Prize in Biomedical Sciences from the Foundation for the National Institutes of […] READ MORE
“For us, raising awareness about this awful disease isn’t limited to May. All year long, we are engaged in delivering discoveries that can transform lives. Because that is where real hope begins.” Kenneth M. Farber, President and CEO Lupus gained the attention it deserves throughout the month of May! Millions of people throughout […] READ MORE
The Lupus Research Alliance’s Multi-cultural Outreach Task Force is out in full force to raise awareness among the African American communities, who face a higher risk of developing the disease, at health expos around the country, including the Essence Music Festival in New Orleans, LA this summer and Healthy Churches 2020 National […] READ MORE
The Lupus Research Alliance collaborated with the Lupus and Allied Diseases Association and the Lupus Foundation of America on a groundbreaking initiative in cooperation with the Food and Drug Administration’s (FDA) externally-led Patient-Focused Drug Development (PFDD) program. The well-attended meeting hosted by the three groups supplemented by a national survey of people with lupus resulted […] READ MORE
