Lupus Research Alliance News
Lupus Research Alliance Earns Coveted 4-Star Rating from Charity Navigator

NEW YORK, NY. March 28 – Lupus Research Alliance earned a 4-star rating from Charity Navigator, America’s largest independent charity evaluator. Awarded for its strong financial health and commitment to accountability and transparency, the Lupus Research Alliance has earned this distinction every year since its founding in 2016.   Using objective analysis, Charity Navigator has […] READ MORE

LRA Funding Helps Identify Uncontrolled Blood Pressure as Particular Risk in Lupus

New results partially funded by the Lupus Research Alliance found that people with systemic lupus erythematosus have almost double the risk for a dangerous condition, resistant hypertension (RHTN) than those without the disease. RHTN is defined as blood pressure that either remains high despite treatment with three anti-hypertensive medications or is controlled only with four […] READ MORE

Patients with Lupus Nephritis-Related Kidney Disease Are Living Longer

March 28, 2019 A new study published this March in Arthritis & Rheumatology found that deaths among patients with end-stage renal disease (ESRD) due to lupus nephritis (LN) fell significantly — by 32% —over the past two decades. The study took into account deaths from all causes, including deaths from cardiovascular disease (CVD) and infection. […] READ MORE

Thank you 2019 Half-Marathon Team Life Without Lupus!

Thanks to the Lupus Research Alliance Team Life Without Lupus, with runners who pounded the pavements at the United Airlines NYC Half Marathon on Sunday to raise funds for lupus research. Every one of those 13.1 miles bring us closer in the journey to Life Without Lupus – their invaluable steps brought the Team’s fundraising […] READ MORE

Peripheral Nervous System Involvement in Systemic Lupus Erythematosus: A Retrospective Study on Prevalence, Associated Factors and Outcome

A new study published in the peer-reviewed journal Lupus shows that lupus can cause damage to the peripheral nervous system (nerves throughout the body outside of the brain and spinal cord). Researchers from several hospitals in Italy analyzed medical records of 1224 lupus patients. Involvement of the peripheral nervous system was seen in 6.9% of […] READ MORE

Lupus Research Alliance and National Minority Quality Forum Release Recommendations to Advance New Lupus Treatments by Increasing Diversity in Clinical Trial Participation

NEW YORK, NY. March 14, 2019.  The Lupus Research Alliance (LRA) and the National Minority Quality Forum (NMQF) today released the insightful report, Addressing the Challenges of Clinical Research Participation Among Populations Disproportionately Impacted by Lupus. The report presents findings and actionable recommendations ranging in scope that can be implemented by any individual or group seeking […] READ MORE

Frailty Measure Predicts Mortality Risk Among People with Lupus

March 11, 2019 A new study published in Arthritis & Rheumatology by many top lupus clinicians found that a frailty index (FI) provides a novel measure of health among people with lupus.  Constructed using data from the Systemic Lupus International Collaborating Clinics (SLICC) group, the FI also predicts risk of mortality. The Systemic Lupus Erythematosus […] READ MORE

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