November 1, 2021 The Lupus Research Alliance (LRA) responded to a Request for Information from the National Institutes of Health’s (NIH) Office of Research on Women’s Health (ORWH) and the Advisory Committee on Research on Women’s Health (ACRWH) as they prepared for an October 2021 conference on advancing women’s health research. Our letter focused on […] READ MORE
November 1, 2021 The Lupus Research Alliance (LRA) responded to a request from U.S. Representatives Diana DeGette and Fred Upton to share input on issues related to the proposed establishment of a new agency, the Advanced Research Projects Agency for Health (ARPA-H). Our letter emphasizes that while we recognize the value of research that is not targeted […] READ MORE
July 31, 2020 In early July we alerted you that the Fiscal Year (FY) 2021 Defense Appropriations Bill was publicly announced with $10 million appropriated for the Lupus Research Program at the Department of Defense. We are thrilled to announce that the House of Representatives today passed this Bill! The many, many phone calls and […] READ MORE
“Advocacy has many forms, including taking action for one’s own health. It’s self-advocacy — even though many would not think of their actions this way,” explains Diane Gross, National Director of Advocacy and Programs at the Lupus Research Alliance. “When patients hear that their insurance company is not going to pay for a medication and then […] READ MORE
June 28, 2018 With an overwhelming majority vote of 359 to 49, the House of Representatives just passed a bill to allocate $5 million to the Defense Department’s Congressionally Directed Medical Research Program for lupus in the 2019 budget. This federal support of lupus research is a result of advocacy by lupus patients, organizations like […] READ MORE
