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Category: News

Statement from the Lupus Research Alliance Related to Halsey’s Lupus Announcement

The Lupus Research Alliance (LRA) expresses deep appreciation to the renowned singer and songwriter Halsey on sharing two powerful Instagram posts (June 4 and June 5) about their diagnosis of systemic lupus erythematosus (SLE) and a rare T-cell lymphoproliferative disorder. Halsey released yesterday on Instagram a new song, The End, expressing their challenges and tagging the Lupus Research […] Read More

Lupus Awareness Month Celebrated Community with Promise and Hope

For centuries writers have described May as a time budding with promise. How apt that it is also when the world recognizes Lupus Awareness Month. With 31 days of May behind us, we celebrate the community that has banded together to make a difference. We appreciate all your amazing contributions throughout the month to: Advance […] Read More

Lupus Research Alliance Grants Lupus Innovation Awards to Nine International Researchers Pushing the Boundaries of Lupus Research

The Lupus Research Alliance (LRA) is proud to announce that nine international researchers are the recipients of this year’s Lupus Innovation Award (LIA). They will conduct innovative research to uncover the underlying mechanisms and identify novel targets and pathways that could be harnessed to predict, monitor, and treat lupus, a complex autoimmune disease. The LIA […] Read More

All the World’s Your Stage During Lupus Awareness Month

Molly McCabe was going to be an opera star, using the gift of a beautiful voice to inspire audiences around the globe. That was before lupus attacked and focused most on the organ that makes singing possible– her lungs. So began two years of feeling sorry for herself, spending her time on her mother’s couch.  […] Read More

A Message from LRA President Introducing LRA’s celebration of Lupus Awareness Month

Dear Friends, Lupus Awareness Month officially starts today, and with so many advancements, never has there been a time for more optimism. We are delighted to begin May following a productive first-anniversary meeting of the Lupus Accelerating Breakthroughs Consortium (Lupus ABC) where people with lupus partner with representatives from the FDA, industry, and researchers on […] Read More

Expert Global Task Force Issues Recommendations for Physical Activity and Exercise in People with SLE

An international task force recently published their recommendations for physical activity and exercise in people with systemic lupus erythematosus (SLE). While the benefit of physical activity in lupus is already recognized, no recommendations had been previously established. Published in the peer-reviewed journal Rheumatic & Musculoskeletal Diseases, this study outlines specific recommendations for integrating physical activity […] Read More

Lupus Accelerating Breakthroughs Consortium Announces Expanded Partnership with U.S. FDA at First Anniversary Meeting

The Lupus Research Alliance (LRA), founder and administrator of the Lupus Accelerating Breakthroughs Consortium (Lupus ABC), announced today at the Consortium’s first anniversary meeting an expanded partnership with the U.S. Food and Drug Administration (FDA) with the inclusion of the Center for Biologics Evaluation and Research (CBER). The addition of CBER to Lupus ABC will […] Read More

LRA Announces Partners on the First Anniversary of the Lupus Landmark Study

The Lupus Research Alliance (LRA) and its clinical research affiliate Lupus Therapeutics (LT) are pleased to announce the group of industry partners working together on the implementation of the Lupus Nexus. The Lupus Nexus, one of LRA’s most ambitious and groundbreaking endeavors, is a first-of-its-kind lupus registry, biorepository, and data exchange platform that aims to […] Read More

Meet Unstoppable Advocate for Minority Health Christopher Reed

Determined to alleviate healthcare disparities for minorities, J. Christopher Reed, JD, urges our lupus community to use the power of National Minority Health Month to spotlight the issue this April. First diagnosed at 16, Christopher fought debilitating lupus symptoms to graduate college in eight years and then Tulane University Law School in three. Throughout college […] Read More

Lupus Peer-to-Peer Early Education Program Expands

Lupus Therapeutics, the clinical research affiliate of the Lupus Research Alliance, has announced an innovative expansion of the highly successful Patient Advocates for Lupus Studies (PALS) program with the introduction of a first-in-lupus “Trial Buddy” component made possible by a partnership with Bristol Myers Squibb. The Trial Buddy addition provides extra support to people with […] Read More