Lupus and Allied Diseases Association Archives

Tag: Lupus and Allied Diseases Association

Long-time Supporter LADA Donates $150,000 to LRA-Funded Research

August 29, 2022 Big thanks go to the Lupus and Allied Diseases Association, Inc. (LADA) for their donation of $150,000 to support research funded by the Lupus Research Alliance given at their 22nd Annual Lupus Charity Golf Classic at Shenendoah Golf Course at Turning Stone in upstate New York. LADA President & CEO Kathleen A. […] Read More

Largest Lupus Survey Points to Ways to Increase Clinical Trial Participation by Underrepresented Minorities

April 21, 2022 The Lupus Research Alliance is proud to share new results published in the prestigious Journal of Clinical Rheumatology from the data collected for the Lupus Patient-Focused Drug Development (PFDD) Initiative that will add to our understanding of who participates in clinical trials and why. This analysis will help inform development of programs […] Read More

Thanks to LADA for Major Donation to Research Funding

August 24, 2021 We give a big thank you to the Lupus and Allied Diseases Association, Inc. (LADA) for their generous donation of $120,000 to support research funded by the Lupus Research Alliance. The funding is specifically directed to Dr. Zahi Touma at University of Toronto for his Modeling Cognitive Impairment project and Dr. Joyce Chang at Boston Children’s […] Read More

Independent Panel Gives High Marks to New Lupus Nephritis Therapies, Policies Reflect LRA Feedback

April 20, 2021 At a public meeting in March led by the Institute for Clinical and Economic Review (ICER), an independent panel voted unanimously that both belimumab (Benlysta) and voclosporin (Lupkynis), newly approved to treat lupus nephritis, provide a health benefit over standard therapy alone. ICER’s policy recommendations for the use of these two medications […] Read More

The Patients’ Voice Heard at LUPUS 2019

April 11, 2019 The Lupus Research Alliance is pleased to report on an inspirational talk our fellow colleague and good friend Kathleen Arntsen, President & CEO of Lupus and Allied Diseases Association, Inc. (LADA) gave at the recent 13th International Congress on Systemic Lupus Erythematosus. Called LUPUS 2019, the meeting was an opportunity for researchers, […] Read More

Lupus Patient-Focused Drug Development Meeting

The Lupus Research Alliance collaborated with the Lupus and Allied Diseases Association and the Lupus Foundation of America on a groundbreaking initiative in cooperation with the Food and Drug Administration’s (FDA) externally-led Patient-Focused Drug Development (PFDD) program. The well-attended meeting hosted by the three groups supplemented by a national survey of people with lupus resulted […] Read More