Enthusiastic … charming … exuberant-these are qualities Lauren Maley has in spades-so much so that you might not easily grasp the extent to which lupus has impacted her young life. Officially she has been coping with lupus for the past five years-but in reality, it has been much longer. A false-negative lupus test resulted in […] READ MORE
When it comes to solving the mysteries of lupus, we must explore all potential avenues of discovery—including the brain. This is why the LRA is funding important research and a clinical trial to address neuropsychiatric lupus—the wide range of symptoms involving the brain that can vary from “brain fog” to stroke to psychosis. We’re also […] READ MORE
Lupus Awareness Month Although this past May—Lupus Awareness Month—wasn’t quite like others, the LRA has initiated efforts for people with lupus to connect. To help our community cope with the effects of COVID-19 in May and beyond, the LRA has unveiled a series of enlighteningly educational videos hosted by Shayla Shorter, PhD. The Learning from […] READ MORE
The challenge of finding more effective treatments for lupus-according to Dr. Fabienne Mackay, PhD-lies in the nature of the disease itself. “Lupus is not one disease, but rather a set of syndromes in which no one treatment will work for all,” she explains. With the objective to develop treatments that target the underlying disease pathways […] READ MORE
In August of 2019, the LRA had the great fortune to form a unique new partnership with Bristol Myers Squibb (formerly Celgene Corporation) -in the creation of the LRA BMS Accelerator Awards. The aim: Fast-track bold cutting-edge research projects. To get this initiative off the ground and running, the Celgene Corporation made an extraordinarily […] READ MORE
July 2, 2020 Saturday, September 12th, 2020 12:00 – 2:00 PM, EDT Register Now ► The Lupus Research Alliance is excited to announce the reimagination of our ManyOne Can. Walk with Us to Cure Lupus presented by GSK. This celebratory Walk experience will unite the entire lupus community as never before – behind one goal, on […] READ MORE
July 6, 2020 A study published in the International Journal of Infectious Diseases by Henry Ford Health System found that treatment with hydroxychloroquine significantly lowered the rate of deaths among patients hospitalized with COVID-19. The analysis of more than 2,500 patients across the six hospitals in the Henry Ford Health System found that 13 percent […] READ MORE
June 24, 2020 If you or someone you know has lupus, you probably are aware that the main culprit behind the onset of disease and its symptoms are caused by the accumulation of destructive antibodies. Normally, antibodies recognize foreign invaders, pathogens like bacteria, viruses or parasites, and deem them a threat. This alerts other immune […] READ MORE
June 30, 2020 The British Medicines and Healthcare Products Regulatory Agency has approved the restart of a global trial that will explore whether the drugs hydroxychloroquine and chloroquine are able to prevent coronavirus infections. Led by Oxford University’s Mahidol Oxford Tropical Medicine Research Unit, the randomized, placebo-controlled trial will enroll around 40,000 healthcare workers and other at-risk workers […] READ MORE
June 26, 2020 The Lupus Research Alliance is disappointed at news from Janssen Pharmaceutical Companies of Johnson & Johnson that it has decided to discontinue the Phase 3 LOTUS study of ustekinumab (Stelara®) in Systemic Lupus Erythematosus (SLE). A Phase 3 trial presents data the U.S. Food and Drug Administration uses to decide whether or […] READ MORE
June 24, 2020 Joint Statement of the American Medical Association, American Pharmacists Association, and American Society of Health-System Pharmacists on new FDA action to Remove Emergency Use Authorization of Medications to Treat COVID-19 The American Medical Association, American Pharmacists Association, and American Society of Health-System Pharmacists issued a statement “emphasizing that the FDA’s recent announcement to cancel the emergency […] READ MORE
June 22, 2020 African-Americans are more likely to develop lupus than Caucasians, but less likely to take part in clinical trials of the disease. However, a new study showed that several simple steps, such as providing transportation and flexible scheduling, may allow more African-Americans to participate in trials. The study was conducted by top lupus […] READ MORE
