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Tag: Patient Advocates for Lupus Studies

Dancing to a Different Tune: Reimagining Career Paths with Resilience

February has been traditionally recognized as Black History Month for nearly 50 years to honor accomplishments of Black Americans – 2025 focuses on contributions in the workforce. LRA is pleased to honor the achievements of so many in the lupus community managing a disease that disproportionately affects people of color. We bring you Sharon V. […] Read More

Championing Patient Power in Lupus

Dr. Stacie Bell came to LRA’s clinical research affiliate Lupus Therapeutics (LT) one year ago to help fulfill the vision of an entire community united to triumph over a complex and confounding disease.  She joined determined to work with the researchers, clinicians, biopharmaceutical companies, and most importantly the people with lupus and their families to […] Read More

Data at ACR 2022 Shows Lupus Research Alliance Peer Education Program Increases Intentions to Join Clinical Trials Among Diverse Patient Population

NEW YORK, NY–November 8, 2022 — The Lupus Research Alliance and clinical researchaffiliate Lupus Therapeutics will present data at ACR Convergence 2022 showing that the pilot peer education program Patient Advocates for Lupus Studies (PALS), increased knowledge, perception, and intentions among people with Systemic Lupus Erythematosus (SLE) to participate in clinical trials. These study results […] Read More

LRA Addressing Health Disparities Among Vulnerable Groups

February 20, 2020 The Lupus Research Alliance (LRA) works hard, often in concert with organizations like the National Minority Quality Forum to alleviate disparities in healthcare among groups at particular risk for lupus, including African-Americans as the group hardest hit by the disease.  Several programs educate healthcare providers, patients and the public to better recognize […] Read More

PALS Clinical Trial Program Opens at Five Universities

August 8, 2019 In five pilot cities, people with lupus who are thinking about taking part in a clinical trial can now join LRA’s Patient Advocates for Lupus Studies (PALS) program created by our affiliate Lupus Therapeutics. The program will pair adults with lupus interested in learning about clinical trials with a peer or “PAL” who […] Read More

Lupus Therapeutics Launches Peer Training Program to Help Patients Benefit from Clinical Trials

NEW YORK, NY. February 1, 2019. Lupus Research Alliance clinical affiliate Lupus Therapeutics launched the Patient Advocates for Lupus Studies (PALS) program with a pilot study to determine its effectiveness in increasing awareness of and participation in lupus clinical trials, particularly among diverse populations.  PALS was formed to address the pressing issue of underrepresentation in clinical studies […] Read More