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Tag: lupus

Lupus: Patient Voices Report Released Today

March 7, 2018 Lupus: Patient Voices Report Released Today We are pleased to announce the release of Lupus: Patient Voices, a comprehensive report based on input from the Externally-led Lupus Patient-Focused Drug Development (PFDD) Meeting and pre-meeting survey conducted last fall. This report includes data and personal accounts from people with lupus on symptoms, daily […] Read More

4th Annual Rally Serves Lupus Research

            4th Annual Rally Against Lupus Serves Lupus Research Lupus Research Alliance Board member Nadeem Meghji, with event Co-Chair Donald Provost and committee members Shannon Ching, Rachel Doyon, Andrea Drasites, and David O’Neill — again created a fun and interactive ping pong fundraising event at SPiN New York. Rally Against […] Read More

2017 Lupus Insight Prize Winner

2017 Lupus Insight Prize Winner Shares Her Insights About Childhood Lupus Dec. 20, 2017.  In piecing together the many complex and varied parts of the lupus puzzle, Virginia Pascual, MD — this year’s winner of the Lupus Insight Prize — looks to her own patients for answers. As a clinician and a scientist, Dr. Pascual’s […] Read More

LRA Mourns Loss of Dear Friend Tony Bennett

July 25, 2023 The Lupus Research Alliance extends heartfelt condolences to the wife, Susan, and children of our former honorary Board member and legendary artist, singer, and philanthropist Tony Bennett.  Tony was an active supporter for our legacy organization, the SLE Lupus Foundation, as a friend of its founder Susan Golick, a pioneer in lupus […] Read More

Ten Tips During Stress Awareness Month and Beyond

April, 2023 Tips to Lower Stress During Stress Awareness Month and Beyond If you are a person with lupus and often feel stress, you’re not alone! Research has shown stress is common among people dealing with a chronic condition like lupus and can cause symptoms like depression, fatigue, and disease flares. In recognition of Stress […] Read More

LRA Welcomes Positive Results with Anifrolumab for Reducing Lupus Flares

May 13, 2021 A new study analyzing data from two large clinical trials showed that the investigational therapy anifrolumab reduced flares in people with moderate to severe lupus while allowing lowered steroid use. The study was published in the professional journal Lupus by top lupus researchers, several of whom are leaders in the Lupus Clinical […] Read More

Amanda Greene Advises on Talking About Your Lupus

October 18, 2018 There are few things that a person living with lupus can control.  The how and when we share our healthcare journey with others is one that we as people living with lupus do have control over.  Each person living with lupus is unique and after 36 years as a lupus patient, I […] Read More