Lupus Patient-Focused Drug Development Archives

Tag: Lupus Patient-Focused Drug Development

Lupus: Patient Voices Report Released Today

March 7, 2018 Lupus: Patient Voices Report Released Today We are pleased to announce the release of Lupus: Patient Voices, a comprehensive report based on input from the Externally-led Lupus Patient-Focused Drug Development (PFDD) Meeting and pre-meeting survey conducted last fall. This report includes data and personal accounts from people with lupus on symptoms, daily […] Read More

Largest Lupus Survey Points to Ways to Increase Clinical Trial Participation by Underrepresented Minorities

April 21, 2022 The Lupus Research Alliance is proud to share new results published in the prestigious Journal of Clinical Rheumatology from the data collected for the Lupus Patient-Focused Drug Development (PFDD) Initiative that will add to our understanding of who participates in clinical trials and why. This analysis will help inform development of programs […] Read More

Lupus Patient-Focused Drug Development Meeting

The Lupus Research Alliance collaborated with the Lupus and Allied Diseases Association and the Lupus Foundation of America on a groundbreaking initiative in cooperation with the Food and Drug Administration’s (FDA) externally-led Patient-Focused Drug Development (PFDD) program. The well-attended meeting hosted by the three groups supplemented by a national survey of people with lupus resulted […] Read More