image description

Tag: HSS

Cómo pueden los hombres hacer frente a una enfermedad crónica como el lupus

October 7, 2021 En reconocimiento del Mes de la Herencia Hispana, compartiremos una entrada del blog de la profesional Priscilla Toral, trabajadora social clínica con licencia (LCSW) en el Hospital for Special Surgery, sobre cómo manejar el lupus siendo hombre. Las comunidades hispana y latina se encuentran entre las que tienen mayor riesgo de contraer […] Read More

LRA’s Month of Lift Up Lupus Ends on a High

June 1, 2021 As Lupus Awareness Month 2021 has come to a close, LRA President Ken Farber takes a look at the many ways we came together to Lift Up Lupus. Take pride in all the lupus community accomplished and hope in the tremendous progress underway. WATCH HERE As Ken touched on, here are some […] Read More

Watch Video of Webcast: Lupus and Cognitive Health

Watch a videotape of our recent webcast: Lupus and Cognitive Health Presented by LRA’s Young Leaders Board People with lupus know only too well the need to avoid stress to prevent flares while optimizing emotional and cognitive wellbeing. But that’s pretty hard to do, especially in this time fraught with societal upheaval amid a global […] Read More

New Study Results Show PROMIS Survey Measures Lupus Experience

August 5, 2019 A new study conducted at Hospital for Special Surgery (HSS) showed that the PROMIS® (Patient-Related Outcomes Measurement Information System) health survey can be used to measure and monitor patients’ experience of lupus that are not captured by standard questionnaires. Researchers gave 223 people with lupus who get their outpatient care at HSS […] Read More