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Tag: Hospital for Special Surgery

Watch Video of Webcast: Lupus and Cognitive Health

Watch a videotape of our recent webcast: Lupus and Cognitive Health Presented by LRA’s Young Leaders Board People with lupus know only too well the need to avoid stress to prevent flares while optimizing emotional and cognitive wellbeing. But that’s pretty hard to do, especially in this time fraught with societal upheaval amid a global […] Read More

Take the Right Shots for Lupus!

August 15, 2019 While August is when we savor the last weeks of summer, it is also the time to look ahead and prepare for fall.  In recognition of National Immunization Month, our Chief Scientific Officer Dr. Teodora Staeva provides background on vaccines and relays government recommendations for which are safe for people with lupus. […] Read More

New Study Results Show PROMIS Survey Measures Lupus Experience

August 5, 2019 A new study conducted at Hospital for Special Surgery (HSS) showed that the PROMIS® (Patient-Related Outcomes Measurement Information System) health survey can be used to measure and monitor patients’ experience of lupus that are not captured by standard questionnaires. Researchers gave 223 people with lupus who get their outpatient care at HSS […] Read More

National Stay Out of the Sun Day

July 3, 2019 Avoiding the sun is something most people with lupus know they just have to live with.  About half of people with lupus experience a “malar” rash that may appear across the cheeks and bridge of the nose in the shape of a butterfly.  Many are sensitive to sunlight (called photosensitivity) meaning that […] Read More

New Treatment Approaches Supported by LRA Were Highlighted at LUPUS 2019

April 11, 2019 The bacteria that cause urinary tract infections may trigger lupus flares, a former Alzheimer’s disease therapy has shown promising results in research models—these are just some of the findings presented by Lupus Research Alliance-funded scientists at the 13th International Congress on Systematic Lupus Erythematosus (LUPUS 2019), held in San Francisco. Here are […] Read More

Congratulations to Our Scientific Advisory Board Co-Chair for Highest ACR Honor

October 22, 2018 Congratulations to our Scientific Advisory Board Co-Chair, Mary K. Crow, MD, for receiving the 2018 Presidential Gold Medal presented by the American College of Rheumatology (ACR) during their Annual Meeting in Chicago. Dr. Crow is Physician-in-Chief at Hospital for Special Surgery (HSS), and Chief of Rheumatology at Weill Cornell Medicine and New York […] Read More