Updates and Events

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Aug. 8, 2017 The New York City Area lupus community came together full force to get the Lupus Research Alliance October 14th Walk with Us to Cure Lupus off to a running start. The fabulous Advancing Lupus Care Through Vital Medical Research event held at iHeart Media headquarters started with cocktails and hors d’oeuvres followed […] READ MORE

Fore! The Third Annual Willie Colon Golf Outing benefiting the Lupus Research Alliance and the Jean Davis Research Grant raised thousands in crucial funds for lupus research programs — while increasing awareness of the disease. Held at the Somerset Hill Country Club in Bernardsville, NJ, the Outing is the premier golf event in the New […] READ MORE

They showed style. They showed grace. But more important, attendees of the 8th Annual Lupus Handbag Luncheon and Silent Auction showed awe for Women of Achievement honorees Claudia Cividino and Alison Lee. Alison began battling lupus as a teenager. She worked in marketing for the beauty industry until, after enduring a lupus-related kidney transplant and […] READ MORE

The Lupus Research Alliance congratulates GlaxoSmithKline (GSK) on the approval of belimumab (Benlysta®) by the U.S. Food and Drug Administration as a self-injectable (subcutaneous) formulation for people with systemic lupus erythematosus being treated with standard therapy. Belimumab is currently approved as a one-hour intravenous infusion given once every four weeks by a healthcare professional in […] READ MORE

Scientists from an international consortium have identified a large number of new genetic markers that predispose individuals to lupus. The study is published in the July 17 issue of the journal Nature Communications and was led by researchers at Wake Forest Baptist Medical Center, Oklahoma Medical Research Foundation, King’s College of London and Genentech Inc. Autoimmune diseases […] READ MORE

Your Hard Work is Working for Lupus Research Millions in funding specifically for lupus research – championed throughout the year by the Lupus Research Alliance and lupus advocates nationwide — were allocated in the budget passed today by the U.S. House of Representatives Appropriations Committee! The appropriations bill provides an additional $5 million for the […] READ MORE

Funds Major Study of Lupus Biomarkers to Predict Flares The 2017 Lupus Insight Prize was awarded on June 15th to Virginia Pascual, MD for a project that shows great promise in understanding the events leading to lupus flares. Dr. Pascual was recently named Founding Director of the Gale and Ira Drukier Institute for Children’s Health […] READ MORE

Three lupus experts from Jacobi Medical Center answered these common questions at an educational seminar co-sponsored by the Lupus Research Alliance. Who gets which tests and what do they mean? What can you do to take better care of your skin? Why are you taking each of your medications? Decoding Your Lab Results Asena Bahce-Altuntas, […] READ MORE

The First Collaborative Conference a Great Success The Lupus Research Alliance and Lupus Foundation New England recently co-hosted the Advancing Lupus Care Through Research and Advocacy Conference in Boston. This was the first joint event for the newly merged Lupus Research Alliance, and its success demonstrates the strength of collaboration! Attendees left with hope for […] READ MORE

The national lupus patient advocacy community is excited to announce that people with lupus will have the chance to be part of a history-making project that includes a meeting called Lupus: Patient Voices on September 25 in the Washington, D.C. area. This very important effort is a tremendous opportunity for individuals with lupus to contribute to lupus drug development […] READ MORE

App developed by Lupus Research Alliance, Pfizer Inc. and Tata to be tested through non-interventional clinical trial called VALUE NEW YORK, N.Y. — The Lupus Research Alliance, the world’s largest private funder of lupus research, and Pfizer Inc., the global biopharmaceutical company, announced the start of a non-interventional clinical study that will test a custom smartphone […] READ MORE