Q: Why is this year’s World Lupus Day so meaningful to you? A: World Lupus Day is the moment when two causes I passionately support – lupus research and mental health awareness – intersect. LRA’s Lift Up Lupus campaign raises awareness of a little-understood disease and lets those of us who live with lupus know […] READ MORE
May 10, 2021 This past year has been a time of stress for all of us, and especially for people with lupus and other chronic diseases who may already be battling loneliness, anxiety and depression. In recognition, the Lupus Research Alliance is focusing our 2021 Lupus Awareness Month activities to Lift Up Lupus. To help […] READ MORE
May 5, 2021 The story of Krysha Thayer and her fiancé Tye Weitman is one that clearly Lifts Up Lupus – the theme the Lupus Research Alliance (LRA) is focusing on during Lupus Awareness Month. We met the couple because Krysha is a Senior Stylist for Color Street, a company that supports the LRA. Tye […] READ MORE
Q: Why are you supporting the LRA’s Lift Up Lupus campaign? A: This was a tough year for all of us, and I am inspired by the sense of optimism conveyed by the LRA’s Lift Up Lupus campaign – and incredibly inspirational stories. There are many misconceptions surrounding lupus, and I hope the Lift Up […] READ MORE
SUMMIT, NJ — May 3, 2021. In honor of May, Lupus Awareness Month, former Super Bowl Champion and Barstool Sports radio personality Willie Colon, hosted the annual Willie Colon Golf Outing for the Lupus Research Alliance (LRA). Dedicated to advancing lupus research, Mr. Colon is a member of the Lupus Research Alliance Board of Directors. […] READ MORE
May 1, 2021 Dear Friends, 2020 will forever be remembered as the year of COVID-19 with much sacrifice by all of us. Yet in many ways, it has also been a banner year for people with lupus. We have seen a true renaissance in research with significant breakthroughs and major new treatment advances. After a decade with only one treatment for lupus approved in half a century, we recently saw the approval of […] READ MORE
April 28, 2021 In a new study led by Dr. Jason S. Knight and funded by the Lupus Research Alliance, researchers found a way to block inflammation by targeting a key protein, IRE1α, found in immune cells that are active in lupus, known as neutrophils. Dr. Knight’s team found that this protein could control some […] READ MORE
April 28, 2021 Xavier Goss is one of the most effective fundraisers for the Lupus Research Alliance ManyOne Can.Walk with Us to Cure Lupus program. Why? Because he’s friendly! Being ready to talk to everyone, caring, and eager to help others is his secret to success. Xavier first became involved with the LRA since 2005 […] READ MORE
April 20, 2021 At a public meeting in March led by the Institute for Clinical and Economic Review (ICER), an independent panel voted unanimously that both belimumab (Benlysta) and voclosporin (Lupkynis), newly approved to treat lupus nephritis, provide a health benefit over standard therapy alone. ICER’s policy recommendations for the use of these two medications […] READ MORE
April 14, 2021 Dr. Boris Reizis and his team, working with a group of clinical rheumatologists led by Dr. Jill Buyon, have made a connection between an enzyme that prevents people’s immune systems from reacting to their own DNA and lupus activity. In a paper just published in the Journal of Experimental Medicine they report […] READ MORE
April 8, 2021 In honor of National Siblings Day, we’re bringing you the story of TwoBeingHealthy — two sisters and strong social media voices – Kate (30) and Em (33) – who are so close they seem almost like twins. They went to the same college, live together in Seattle, hang out with the same […] READ MORE
March 31, 2021 As part of the LRA’s mission to accelerate development and availability of much-needed new diagnostics and treatments for lupus, the organization’s President and CEO, Mr. Kenneth M. Farber, submitted a letter to President Joseph Biden to express LRA’s strong support for Dr. Janet Woodcock to be nominated for Commissioner of the U.S. […] READ MORE
