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Tag: lupus research alliance

Hard Advocacy Work Pays Off for Lupus!

August 24, 2018 The U.S. Senate voted 85 to 7 to approve the $2 billion budget increase Lupus Research Alliance advocates requested for medical research funded by the National Institutes of Health (NIH). This increase of 5.4 percent would bring the budget for the NIH up to $39,084,000,000. Per today’s vote, the Labor, Health and […] Read More

CareFirst and Exagen Diagnostics Announce Evidence Development Agreement for AVISE® Lupus Diagnostic Test

August 20, 2018 Source: CareFirst BlueCross BlueShield Press Release CareFirst BlueCross BlueShield (CareFirst) and Exagen Diagnostics, Inc. (Exagen) today announced an agreement to collaborate to study the impact of Exagen’s proprietary AVISE Lupus test.  As part of the agreement, select CareFirst members will have access to the AVISE Lupus test to aid in the differential […] Read More

Potential Treatment for Sun Damage Discovered with LRA Funding

August 16, 2018 Exposure to the sun is hard on everyone’s skin, causing cells to die. But skin cells are much more vulnerable in people with lupus.  That reaction is called photosensitivity. A team of scientists led by Theresa Lu, MD, PhD, at Hospital for Special Surgery (HSS) in New York may have discovered why. […] Read More

Advancing Research Exponentially

August 14, 2018 Advancing Research Exponentially An Update on AMP by Jill Buyon, MD Lupus nephritis (LN), one of the dreaded complications of lupus, causes patients to suffer, sometimes for decades, with no new treatment in sight. But now is the time to leverage technology for major advances, which is exactly what the Accelerating Medicines […] Read More

Inflammation Trigger Discovery May Lead to New Treatment

August 2, 2018 Inflammation helps us repair injuries and defeat infections. It’s supposed to shut down once a crisis is over. In people with lupus, however, inflammation persists and can damage the joints, skin, and organs. Researchers have discovered a molecular sensor in cells known as the NLRP3 inflammasome that triggers inflammation. When the inflammasome […] Read More

Albert T. Roy, Executive Director Lupus Therapeutics, LLC

I’m writing this blog because the Lupus Research Alliance, and its affiliate, Lupus Therapeutics is determined to drive discovery and development of new treatments for lupus! I am proud to serve as Executive Director of Lupus Therapeutics, which serves as fiscal and administrative agent of the Lupus Clinical Investigators Network (LuCIN), a network of 57 […] Read More

Get Inspired!

July 17, 2018 The Lupus Research Alliance New York City Lupus Research Reception featured incredible speakers whose remarks are well worth sharing: Larry Schreiber, President of Empire BlueCross BlueShield; Meggan Mackay, MD, MS, Investigator at the Feinstein Institute for Medical Research; and Kenneth Farber, President & CEO, Lupus Research Alliance. The take-aways are clear – companies fund causes […] Read More

Take Survey to Help Advance Clinical Studies for New Lupus Treatments

July 3, 2018 The Lupus Research Alliance, Antidote, and SCORR Marketing are conducting a survey to learn what people with lupus and their caregivers, or care partners, think about clinical research.  Survey participation will take about 20 minutes and your answers are confidential. By answering these questions, you can help us make clinical trials easier for people willing to participate. […] Read More