Diane Gross Archives - Lupus Research

Tag: Diane Gross

Interview with Eliza Ngan-Dittgen, LANtern® at HSS for Asian American Pacific Islander Heritage Month

May 25, 2022 In recognition of Asian American Pacific Islander Heritage Month, we spoke with the Program Supervisor of LANtern® (Lupus Asian Network) at the Hospital for Special Surgery to learn more about how lupus affects this population and what services are offered to the community. The Lupus Research Alliance collaborates closely with LANtern – […] Read More

Advocacy on the Personal Level

“Advocacy has many forms, including taking action for one’s own health. It’s self-advocacy — even though many would not think of their actions this way,” explains Diane Gross, National Director of Advocacy and Programs at the Lupus Research Alliance. “When patients hear that their insurance company is not going to pay for a medication and then […] Read More

Independent Panel Gives High Marks to New Lupus Nephritis Therapies, Policies Reflect LRA Feedback

April 20, 2021 At a public meeting in March led by the Institute for Clinical and Economic Review (ICER), an independent panel voted unanimously that both belimumab (Benlysta) and voclosporin (Lupkynis), newly approved to treat lupus nephritis, provide a health benefit over standard therapy alone. ICER’s policy recommendations for the use of these two medications […] Read More

23andMe Study Confirms Lupus Can Run in Families and Other New Insights

August 25, 2020 A study started four years ago and conducted by 23andMe provided many insights about lupus as a complex disease that is extremely difficult to diagnose and treat. While the survey of nearly 6,000 participants did not find new genetic factors causing lupus as hoped, the study confirmed that lupus can run in […] Read More

Lupus Research Alliance and National Minority Quality Forum Release Recommendations to Advance New Lupus Treatments by Increasing Diversity in Clinical Trial Participation

NEW YORK, NY. March 14, 2019. The Lupus Research Alliance (LRA) and the National Minority Quality Forum (NMQF) today released the insightful report, Addressing the Challenges of Clinical Research Participation Among Populations Disproportionately Impacted by Lupus. The report presents findings and actionable recommendations ranging in scope that can be implemented by any individual or group seeking […] Read More

Taking Care of Yourself as You Grow Up with Lupus

October 21, 2018 We are excited to participate in a new program at the American College of Rheumatology meeting this year – co-authoring a presentation in the Patient Perspectives session. Diane Gross, National Director of Advocacy and Programs worked with Denita Perry, a young woman living with lupus since her childhood to create a poster […] Read More

Advocacy: The Critical First Step

Advocacy can mean different things to different people. Some seek to make changes in policy and funding at state and federal levels by helping Congress and government agencies better understand what it means to live with lupus. For others, advocacy is a way to take action with respect to their own health. Regardless of the […] Read More