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Lupus Resources

For the purpose of further investigation, the Alliance for Lupus Research provides links to other sites that may be of interest. The ALR does not monitor, substantiate or endorse the information offered on these sites. It is recommended that you review any information you get from searching on the Internet with your health care professional who is your primary resource to meet your individual medical needs

ALR Resources

Facebook
http://www.facebook.com/allianceforlupusresearch

MySpace
www.myspace.com/lupusresearch

Twitter
www.twitter.com/Alliance4Lupus

YouTube
www.youtube.com/myalr

SLEGEN
www.slegen.org
The genetic makeup of an individual strongly influences the risk of developing systemic lupus erythematosus (SLE). The identification of genes that predispose an individual to SLE will lead to earlier and better diagnosis, better treatments, and possibly prevention.

Other Resources

Arthritis Foundation
www.arthritis.org
Information on the prevention, diagnosis and treatment of lupus and various forms of arthritis.

About.com Rare/Orphan Disease Guide
lupus.about.com/cs/lupussle/index.htm
Lupus information, how-to’s, and links in an easy-to-read format.

American College of Rheumatology Home Page
www.rheumatology.org/index.asp
Listings of rheumatologists and a lupus fact sheet.

Centerwatch Clinical Trials Listing
http://www.centerwatch.com/clinical-trials/overview.aspx
Clinical Trials sponsored by government and industry.

Clinical Trials
www.clinicaltrials.gov
NIAID sponsored clinical trials.

Could I have Lupus
http://www.couldihavelupus.gov/?
The Could I Have Lupus? campaign is designed to heighten awareness and create a sense of urgency about lupus. With the help of women who are actually living with lupus, we are sending a message to women who are suffering from lupus symptoms – that they can find support, hope and, most of all, answers. They just have to start by asking the right question: “Could I have lupus?”

www.DxLupus.org
Run by Rheuminations, Inc., DxLupus is a patient-focused website serving people with lupus and those who care for them...

The Kelly Fund for Lupus
http://www.thekellyfundforlupus.org/
The Kelly Fund For Lupus, Inc. is dedicated towards raising funds that provide research for a cure and increase community awareness of lupus.

The Lupus Initiative
thelupusinitiative.org
Free resources to learn more about how to address the persistent gaps between the lupus-related health status of minorities and non-minorities, women and men, and those above and below the poverty line.

Lupus Nephritis Trials Network
Lupusnephritis.org

The Lupus Nephritis Trials Network (LNTN) is a worldwide organization that brings researchers together with the shared goal of improving outcomes for patients with lupus nephritis.

Lupus Patients Understanding & Support
www.lupus-support.org.uk for free information
www.lupus-forums.org.uk for free support
A non-profit organization offering a unique service: free information and free psychological support. Our aim is to meet the needs of those affected by lupus and this includes researching into the psychological aspects and designing a "support" service which includes using the internet as a medium.

The Lupus Site
www.uklupus.co.uk/The Lupus Site—from the UK.
A guide for lupus patients and their families

MEDLINEplus Health Information
medlineplus.nlm.nih.gov/
A service of the National Library of Medicine.

National Institute of Allergy and Infectious Diseases (NIAID)
www.niaid.nih.gov
U.S. government site offering information and free publications on autoimmunity.

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
www.nih.gov/niams
Read about current NIAMS supported lupus research and order free books and pamphlets.

National Institutes of Health (NIH)
www.nih.gov
The Federal focal point for medical research in the U.S.

Office of Research on Women's Health
http://orwh.od.nih.gov/
The Office of Research on Women's Health (ORWH) serves as a focal point for women's health research at the NIH. Established in September 1990 within the Office of the Director.  ORWH works in partnership with the NIH institutes and centers to ensure that women's health research is part of the scientific framework at NIH and throughout the scientific community.

PubMed
www.ncbi.nlm.nih.gov/PubMed
PubMed, a service of the National Library of Medicine, includes over 14 million citations for biomedical articles back to the 1950's. These citations are from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.

The US in Lupus
usinlupus.com
The US in lupus is a place to come together and find information, strength, and encouragement for people who want to live well while managing life with lupus.

International

Gladel Latin America
http://www.gladel.org/contenidos/2009/08/10/Editorial_2715.php

ARGENTINA
http://www.alua.org.ar/   - Asociación Lupus Argentina (ALUA)

ESPAÑA
http://www.felupus.org/lupus.php  - Federación Española de Lupus (Felupus)
http://acleg.entitatsbcn.net/enlaces/ - Asociación Catalana de Lupus Eritematoso Generalizado (ACLEG)
http://www.fcarreras.org/es

COLOMBIA
www.fundacionluppso.org#sthash.zybhJPBh.dpuf  (Fundación Luppso)
Fundación Colombiana de Lupus (FUNCOLUP)

NICARAGUA
flesnic.org - Fundación de Lupus Eritematoso Sistémico de Nicaragua (FLESNIC)

PERU
www.alupperu.org - Asociación Lupus Perú (ALUP)

BRASIL
www.superandolupus.com.br
Associação Brasileira Superando o Lúpus

 

 


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