Scientific Resources

Resources

The Lupus Research Alliance (LRA) and its affiliate Lupus Therapeutics (LT) are developing – in close collaboration with the academic, industry and patient communities – an unparalleled patient registry and biorepository coupled with data sharing and analysis platform. This unique infrastructure, the Lupus Nexus (LNx), will provide prospective, longitudinal, well-phenotyped data, patient-reported data, and linked biosamples from over 3,500 lupus patients. Recruitment of patients will be conducted through 24 of LT’s Lupus Clinical Investigators Network (LuCIN) sites, with enrollment beginning in mid-2023.

The vision for the Lupus Nexus is to transform lupus research and drug development through unprecedented information exchange capabilities. The platform will provide a collaborative solution that includes patient populations disproportionally affected by lupus. The Lupus Nexus will be a source of highly curated data to catalyze global collaboration, research innovation, and precision medicine approaches to accelerate lupus research and drug development.

For more information, please contact the Lupus Nexus team at LupusNexus@lupusresearch.org.

Lupus Therapeutics/Lupus Clinical Investigators Network (LuCIN)

Lupus Therapeutics, a fully owned affiliate of the Lupus Research Alliance, manages the Lupus Research Alliance-supported Lupus Clinical Investigators Network (LuCIN) and works with industry, academia and patients to accelerate lupus research and translation.