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Lupus Research Alliance Patent and Intellectual Property Policy

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The Lupus Research Alliance (LRA) and its affiliate Lupus Therapeutics (LT) are developing – in close collaboration with the academic, industry and patient communities – an unparalleled patient registry and biorepository coupled with data sharing and analysis platform. This unique infrastructure, the Lupus Nexus (LNx), will provide prospective, longitudinal, well-phenotyped data, patient-reported data, and linked biosamples from over 3,500 lupus patients.  Recruitment of patients will be conducted through 24 of LT’s Lupus Clinical Investigators Network (LuCIN) sites, with enrollment beginning in mid-2023.

The vision for the Lupus Nexus is to transform lupus research and drug development through unprecedented information exchange capabilities. The platform will provide a collaborative solution that includes patient populations disproportionally affected by lupus. The Lupus Nexus will be a source of highly curated data to catalyze global collaboration, research innovation, and precision medicine approaches to accelerate lupus research and drug development.

For more information, please contact the Lupus Nexus team at LupusNexus@lupusresearch.org.

Lupus Therapeutics, a fully owned affiliate of the Lupus Research Alliance, manages the Lupus Research Alliance-supported Lupus Clinical Investigators Network (LuCIN) and works with industry, academia and patients to accelerate lupus research and translation.

• NIH: National Institutes of Health
  • NHLBI: National Heart, Lung, and Blood Institute
  • NIAID: National Institute of Allergy and Infectious Diseases
  • NIAMS: National Institute of Arthritis and Musculoskeletal and Skin Diseases
  • NICHD: National Institute of Child Health and Human Development
  • NIDDK: National Institute of Diabetes and Digestive and Kidney Diseases
  • NIEHS: National Institute of Environmental Health Sciences
  • NIGMS: National Institute of General Medical Scientists
  • NIMHD: National Institute on Minority Health and Health Disparities
  • NINDS: National Institute of Neurological Disorders and Stroke
• CDC: Centers for Disease Control and Prevention
• VA: U.S. Department of Veterans Affairs

AAAAI Annual Meeting
February 27-March 2, 2026
Philadelphia, PA

15th European Lupus Meeting
March 4-7, 2026
Lisbon, Portugal

IMMUNOLOGY2026™
April 15-19, 2026
Boston, MA

38th Annual CSI Conference
April 26-29, 2026
Winnipeg, Canada

British Society for Rheumatology Annual Conference
April 28-30, 2026
Glasgow, Scotland

Clinical Immunology Society 2026 Annual Meeting
May 6-9, 2026
New Orleans, LA

EULAR 2026 Congress
June 3-6, 2026
London, UK

FOCIS 2026 Annual Meeting
June 9-12, 2026
San Francisco, CA

European Congress of Immunology 2027
September 5-8, 2026
Florence, Italy

Cytokines 2026: 14th Annual Meeting of the International Cytokine & Interferon Society
October 18-21, 2026
Glasgow, Scotland

28th Asia-Pacific League of Associations for Rheumatology Congress
October 28-November 1, 2027
COEX, Republic of Korea

ACR Convergence 2026
November 6-11, 2026
Orlando, Florida

LUPUS-CORA 2027
May 8-11, 2027
Florence, Italy