March 25, 2020
LRA Sponsors COVID-19 Global Rheumatology Alliance
The LRA is proud to be among the sponsors of the COVID-19 Global Rheumatology Alliance, a grassroots group led by rheumatologists and uniting rheumatologists and patients with rheumatic diseases worldwide to respond to the global pandemic.
In concert with the American College of Rheumatology, the group’s mission is to create a secure international data registry called the COVID-19 Rheumatology Registry. It is designed for healthcare providers to share their experience treating specific cases of people with rheumatologic conditions such as lupus who develop COVID-19. Reporting will also record how common rheumatic medications like Plaquenil impact patients’ outcomes and evaluate the risk of infection in patients on immunosuppression.
Clinicians are asked to use the COVID-19 Global Rheumatology Alliance site to report any and all cases of COVID-19 in rheumatology patients, including those with mild or no symptoms. The group plans to use the relevant information from these cases to provide timely updates to the rheumatologists worldwide.
The de-identified information collected in this registry will be shared with the scientific community for analysis. A patient-entered registry component is currently under development.