ThorSport Racing & Ty Majeski Partner with Lupus Research Alliance to Drive Awareness for Lupus
ThorSport Racing and 2024 NASCAR Truck Series Champion Ty Majeski are teaming up with the Lupus Research Alliance (LRA) to launch a...
MADRID, Spain. June 13, 2019 – Results of the first clinical trial conducted through the Lupus Research Alliance Lupus Clinical Investigators Network (LuCIN) were presented today at the European Congress of Rheumatology (EULAR) 2019. The study, called VAlidation in LUpus of an Electronic Patient Reported Outcomes Tool (VALUE), showed that a custom smartphone app allowed people with lupus to record symptoms and health-related quality of life in real time rather than waiting to fill out surveys during doctor visits.
The app was designed with input from people with lupus to capture Patient Reported Outcomes (PROs).
The full press release is available on the Lupus Therapeutics website.