Advocate for Lupus – Contact Your Legislators! March 21, 2018 The color purple and the word lupus filled the halls of the U.S. Capitol yesterday as over 90 determined advocates visited nearly 100 representatives, senators and staff to share why we need their support for lupus research. And we thank the PA FUND for […] READ MORE
Thank You 2018 Half-Marathon Team – Life Without Lupus! March 19, 2018 The Lupus Research Alliance Team Life Without Lupus made a run for it this weekend at the United Airlines NYC Half! Over the past nine years, Team Life Without Lupus has raised over $1 million! We thank this determined team for the […] READ MORE
The Lupus Research Alliance Has Spots in the 2018 TCS New York City Marathon! Run for Life Without Lupus Sunday, November 4, 2018 Apply online today! Details and application Here Runners who commit to fundraising a minimum of $3,000 receive: Guaranteed spot on Team Life Without Lupus Training program Social events […] READ MORE
Join Us on the Hill March 20 as a Virtual Advocate for Lupus! Congress will be seeing purple next week when advocates representing the Lupus Research Alliance visit them Tuesday March 20 to convey why we need more funds for lupus research. We are proud to continue our March Hill Day […] READ MORE
March 12, 2018 Innovative novel research, co-funded by the Lupus Research Alliance, has produced a significant discovery about the role of bacteria and points to the potential for a vaccine or treatment that might prevent an autoimmune attack by suppressing specific bacteria. Led by Dr. Martin Kriegel at Yale University, the study was published today […] READ MORE
March 7, 2018 Lupus: Patient Voices Report Released Today We are pleased to announce the release of Lupus: Patient Voices, a comprehensive report based on input from the Externally-led Lupus Patient-Focused Drug Development (PFDD) Meeting and pre-meeting survey conducted last fall. This report includes data and personal accounts from people with lupus on symptoms, daily […] READ MORE
Lupus Industry Council Study Finds Inconsistency of ANA Tests A new study funded by the Lupus Research Alliance Lupus Industry Council shows that not all individuals who have been diagnosed with lupus remain positive for antinuclear antibodies (ANA) despite the long-held scientific belief to the contrary. Importantly, this study also reveals that whether a person […] READ MORE
February 21, 2018 Source: Press Release, National Institutes of Health NIH program to accelerate therapies for arthritis, lupus releases first datasets Collaborative effort provides important clues about potential research targets NEW YORK, NY. Feb. 21, 2018. Datasets characterizing individual cells in rheumatoid arthritis and systemic lupus erythematosus disease tissue from the Accelerating Medicines Partnership for […] READ MORE
June 24, 2020 The TCS New York 2020 TCS New York City Marathon scheduled for Sunday November 1st, 2020 has been cancelled due to the coronavirus pandemic. Runners who signed up to run with the Lupus Research Alliance Team Life Without Lupus should contact Lana Munoz at LMunoz@lupusresearch.org for more information. The 50th running of […] READ MORE
Celebrate Black History Month! What better time to recognize the contribution of someone who is working to help the lupus community, and particularly concerned with overcoming disparities in care most striking among African Americans. As a 2017 Novel Research Grant recipient, Andrea Knight, MD, MSCE of Children’s Hospital of Philadelphia is leading a clinical study […] READ MORE
Jan. 25, 2018 Source: Press release, Exagen Diagnostics GSK and Exagen Diagnostics announced their collaboration that aims to make it easier for doctors to diagnose lupus. “GSK will raise awareness of Exagen’s AVISE diagnostic and monitoring tests, which have been shown to help diagnose and monitor SLE, to a select group of healthcare professionals.” READ MORE
Jan. 25, 2018 To honor her late aunt’s memory, Lady Gaga gave a sneak peak of a new song “Joanne” from her Grammy-nominated album of the same name. The song celebrates her aunt Joanne Stefani Germanotta, who died of lupus at just 19. Lady Gaga announced that a donation is being made to the Lupus […] READ MORE
