May 11, 2021 The Lupus Research Alliance is pleased to share the following article by one of our grantees Dr. Andrea Knight on hopeful developments in neuropsychiatric lupus and how her own research is improving mental health among children with lupus. Supporting major research advances is how the LRA fulfills its mission to Lift Up […] READ MORE
May 10, 2021 The highly prestigious medical journal The Lancet published the results of Aurinia’s Phase 3 AURORA 1 study testing Lupkynis™ (voclosporin) in adults with lupus nephritis. Lupkynis was approved by the U.S. Food and Drug Administration based on these data. The AURORA 1 study results showed that Lupkynis in combination with the commonly used […] READ MORE
With lupus, the immune system attacks instead of protects the body, including the brain and nervous system. Lupus and its treatments can impair mental & emotional health. Neuropsychiatric lupus affects 80-90% of people with lupus. Neuropsychiatric lupus describes feelings of depression, headaches, and lupus fog — trouble thinking or remembering due […] READ MORE
Q: Why is this year’s World Lupus Day so meaningful to you? A: World Lupus Day is the moment when two causes I passionately support – lupus research and mental health awareness – intersect. LRA’s Lift Up Lupus campaign raises awareness of a little-understood disease and lets those of us who live with lupus know […] READ MORE
May 10, 2021 This past year has been a time of stress for all of us, and especially for people with lupus and other chronic diseases who may already be battling loneliness, anxiety and depression. In recognition, the Lupus Research Alliance is focusing our 2021 Lupus Awareness Month activities to Lift Up Lupus. To help […] READ MORE
May 5, 2021 The story of Krysha Thayer and her fiancé Tye Weitman is one that clearly Lifts Up Lupus – the theme the Lupus Research Alliance (LRA) is focusing on during Lupus Awareness Month. We met the couple because Krysha is a Senior Stylist for Color Street, a company that supports the LRA. Tye […] READ MORE
Q: Why are you supporting the LRA’s Lift Up Lupus campaign? A: This was a tough year for all of us, and I am inspired by the sense of optimism conveyed by the LRA’s Lift Up Lupus campaign – and incredibly inspirational stories. There are many misconceptions surrounding lupus, and I hope the Lift Up […] READ MORE
SUMMIT, NJ — May 3. In honor of May, Lupus Awareness Month, former Super Bowl Champion and Barstool Sports radio personality Willie Colon, hosted the annual Willie Colon Golf Outing for the Lupus Research Alliance (LRA). Dedicated to advancing lupus research, Mr. Colon is a member of the Lupus Research Alliance Board of Directors. In […] READ MORE
May 1, 2021 Dear Friends, 2020 will forever be remembered as the year of COVID-19 with much sacrifice by all of us. Yet in many ways, it has also been a banner year for people with lupus. We have seen a true renaissance in research with significant breakthroughs and major new treatment advances. After a decade with only one treatment for lupus approved in half a century, we recently saw the approval of […] READ MORE
April 28, 2021 In a new study led by Dr. Jason S. Knight and funded by the Lupus Research Alliance, researchers found a way to block inflammation by targeting a key protein, IRE1α, found in immune cells that are active in lupus, known as neutrophils. Dr. Knight’s team found that this protein could control some […] READ MORE
April 28, 2021 Xavier Goss is one of the most effective fundraisers for the Lupus Research Alliance ManyOne Can.Walk with Us to Cure Lupus program. Why? Because he’s friendly! Being ready to talk to everyone, caring, and eager to help others is his secret to success. Xavier first became involved with the LRA since 2005 […] READ MORE
April 20, 2021 At a public meeting in March led by the Institute for Clinical and Economic Review (ICER), an independent panel voted unanimously that both belimumab (Benlysta) and voclosporin (Lupkynis), newly approved to treat lupus nephritis, provide a health benefit over standard therapy alone. ICER’s policy recommendations for the use of these two medications […] READ MORE
