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Advocacy Toolkit – Make Your Voice Heard

The Lupus Research Alliance’s advocacy efforts focus on urging Congress to provide the funds needed to support research into lupus that can lead to better treatments and, ultimately, a cure. You can make your voice heard, too.

We have developed several tools and templates to help our volunteer advocates spread the word throughout the year. TIt is also powerful to visit them in their local offices when they leave Washington to go home to work in their districts during congressional recesses. However, visits may not be possible during this time of the COVID-19 pandemic. You can call their local office to check their policy for appointments in person or via Zoom or phone.

No matter the form of communication, as a lupus advocate, your goal for your meeting with legislators locally is to highlight why funding for lupus research is so important. They may not know much about lupus or why better treatments and a cure are needed. But they will care more and fight harder if they understand how lupus really affects people — people like you or your loved one.

See the tools below for how to conduct a meeting to communicate why lupus research dollars are so important.

By building a relationship over time — through letters, emails, phone calls and visits — you have a much better chance of convincing them to support issues important to the lupus community.

Please email us at advocacy@lupusresearch.org with any questions or if you’d like to share your own advocacy activities.

Write a Letter

Legislators receive many emails and letters from their constituents every day. Our Lupus Legislative Action Center provides template emails on specific issues we are advocating for and offers automated tools you can use to email your legislators directly. Or you can use our templates to guide your own handwritten personalized letters, which are the most influential.

Sample Letter

Meet With Congress

You can have a particular impact by meeting in person with your representative or senators in Washington, D.C., or in their local offices.

Your own story is your best tool to advocate for the lupus community. You may only have 10 to 15 minutes in which to tell your story and explain what issues or legislation are important to you and why they are important for the district or state the elected official represents.

Create a Proclamation

People must know about lupus to understand the challenges it presents. Increasing awareness is an important part of our advocacy work. One way to do that is by getting a proclamation from a state or city official, such as a governor, mayor or city council member.

May is Lupus Awareness Month — a great time to have a proclamation. Keep in mind it can take months to get a proclamation, so make sure you start early. If you have a relationship with a state or city legislator, you can ask them for assistance and support in obtaining a proclamation.

Proclamation Text
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