Advocate

The Lupus Research Alliance invites you to join us when we Take it to the Hill to Advocate for Lupus Research March 28th— 31st! This year, the Lupus Research Alliance will be providing resources to empower advocates to meet with their members of Congress and their staff virtually.


Advocates who registered to join LRA before the deadline of February 22 will participate in several training webinars leading up to March 28. The schedule for these webinars is as follows, but if you can't make it on the scheduled date, you can watch the recording any time:


    March 9, 1 pm Eastern: Advocacy 101 Congressional Basics: Background to Help You Be a Successful Advocate
    Matt Dennis, Senior Vice President, CRD Associates, L.L.C. 
    Lindsey Trischler, Senior Policy Associate, CRD Associates, L.L.C

    March 16, 1 pm Eastern: Connecting with Congress: How to Effectively Share Your Story and Make an Impact
    Lupus Advocates: Jiwa Farrell, Kelli Roseta, and Dina Thachet

    March 23, 1 pm Eastern: Securing Federal Support for Lupus Research: An Overview of LRA’s Advocacy “Asks”
    Matt Dennis, Senior Vice President, CRD Associates, L.L.C. 
    Lindsey Trischler, Senior Policy Associate, CRD Associates, L.L.C

    April 6, 1 pm Eastern: Advocacy Through the Year and Engaging Local Media
    Lupus Advocates: Jiwa Farrell and Kelli Roseta.


    These trainings will provide advocates with the necessary background and information to help make their meetings with members or Congress a success! Each session will provide ample time for advocates to ask questions about the material presented.

    Advocates from the same state will be grouped into teams to meet together with their senators and representatives.

    If you have experience meeting with members of Congress, we encourage you to volunteer to be a Team Leader! Team Leaders will coordinate with their team to schedule and prepare for meetings. LRA will provide the Team Leaders with everything they need to schedule these meetings including: the email addresses for their Congressional members’ staff; a draft invitation email; special training with Q+A sessions, and individual support from LRA staff.

    Registration is now closed. If you registered, you will receive an email on how to access the training sessions and materials before the first session on March 9. If you have not registered, you will still have opportunities to amplify lupus voices by using our Legislative Action Center to urge your legislators to support increased funding for lupus research. Stay tuned for updates.

    Reach out to advocacy@lupusresearch.org with any questions

    Thank you to Aurinia Pharmaceuticals and the PA Fund for Patient Advocacy at the LRA for helping make possible this 2022 program. For seven years, the PA Fund for Patient Advocacy has supported the LRA in bringing the voices of people with lupus to Capitol Hill.

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