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Lupus Community Gathers for the First Congressional Lupus Caucus

July 18, 2012

Last week, members of the lupus community gathered in Washington, DC for the first Congressional briefing on lupus. The meeting of the Congressional Lupus Caucus gave those attending a chance to share their personal stories and to speak about why supporting lupus research and considering future policy is vital for advancing treatments and ultimately finding a cure for lupus.

Karen Geisenheimer Morris attended with the Alliance for Lupus Research (ALR) and says, “It was an honor and privilege to speak to Congress on behalf of the ALR and the millions of people who share my struggles and frustrations with this terrible disease. It was very encouraging to see the large number of Congressional attendees and their enthusiastic response to our meeting. While this has been a rough road, it is important for us to get the word out there.”

Karen Geisenheimer 

Karen Geisenheimer Morris speaks to the Congressional Lupus Caucus


Co-Chaired by Representatives Tom Rooney (R-FL), Jim Moran (D-VA), William Keating (D-MA) and Ileana Ros-Lehtinen (R-FL), speakers at the meeting also included Dr. Stephen Katz, Director, National Institute of Arthritis, Musculoskeletal, and Skin Diseases and Dr. Susan Manzi, Chairperson, Department of Medicine, West Penn Allegheny Health System and Vice Chair and Professor of Medicine, Temple University.

Karen Geisenheimer Morris sums up the goal of participants with her thoughts. She adds, “This one meeting was a huge step on the path to opening more doors on the topic of lupus. This means more research, more awareness and hopefully even a cure. I am so grateful to have been a part of that first step and am extremely excited to keep the momentum going.”




 




Lupus Community Gathers for the First Congressional Lupus Caucus

July 18, 2012

Last week, members of the lupus community gathered in Washington, DC for the first Congressional briefing on lupus. The meeting of the Congressional Lupus Caucus gave those attending a chance to share their personal stories and to speak about why supporting lupus research and considering future policy is vital for advancing treatments and ultimately finding a cure for lupus.

Karen Geisenheimer Morris attended with the Alliance for Lupus Research (ALR) and says, “It was an honor and privilege to speak to Congress on behalf of the ALR and the millions of people who share my struggles and frustrations with this terrible disease. It was very encouraging to see the large number of Congressional attendees and their enthusiastic response to our meeting. While this has been a rough road, it is important for us to get the word out there.”

Karen Geisenheimer 

Karen Geisenheimer Morris speaks to the Congressional Lupus Caucus


Co-Chaired by Representatives Tom Rooney (R-FL), Jim Moran (D-VA), William Keating (D-MA) and Ileana Ros-Lehtinen (R-FL), speakers at the meeting also included Dr. Stephen Katz, Director, National Institute of Arthritis, Musculoskeletal, and Skin Diseases and Dr. Susan Manzi, Chairperson, Department of Medicine, West Penn Allegheny Health System and Vice Chair and Professor of Medicine, Temple University.

Karen Geisenheimer Morris sums up the goal of participants with her thoughts. She adds, “This one meeting was a huge step on the path to opening more doors on the topic of lupus. This means more research, more awareness and hopefully even a cure. I am so grateful to have been a part of that first step and am extremely excited to keep the momentum going.”




 





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