The GOAL of organizing patients against lupus
Lim, S. Sam, MD
Lupus can be a complex disease with many different manifestations. One challenge in studying lupus is having access to large numbers of patients representing the population whose disease has already been rigorously documented. This group would provide additional information on lupus and would be an efficient source of blood, urine, or DNA needed for many on-going research studies.
The Georgia Lupus Registry, funded by the Centers for Disease Control, is identifying and describing every patient with lupus in Atlanta by extensively reviewing medical records and laboratory results from a full range of hospitals and physician practices. With this pilot grant, Dr. Lim and his team will demonstrate the feasibility of assembling and following patients identified from this powerful registry. This novel group, called Georgians Organized Against Lupus (GOAL), will receive mailings once or twice a year. Mailings will include educational material, a research questionnaire, and information on the ALR. Patients will also be encouraged to participate in the ALR’s Walk with Us event.
What this means to people with lupus: Assembling and following a large group of well-described lupus patients throughout the population will help us better understand the impact of lupus on the public health.