Leading the way to a cure

Lupus Research Update: 2013 Volume 1

Volume 1, 2013 - Online Edition | In This Issue

Making the Connection Between Cardiovascular Disease and Lupus >
The ALR Welcomes New Board Member Daniel LaVecchia >
Two Compassionate Hearts Work to End Lupus >
2013 ALR TIL Grants Awarded >
Lupus News Corner >

Two Compassionate Hearts Work to End Lupus

Jackie Rincon and Marlene Ross are a rare breed. These young women take extra steps for the good of others - and the ALR is grateful to be the beneficiary of their full, open hearts.

They are bound to the ALR in many similar ways: Jackie and Marlene both work for JP Morgan, both started as walkers in the NJ Walk with Us to Cure Lupus event - and neither of them have the disease.

"I actually met Marlene through the ALR. My family and I were already involved with the NJ event before I learned that JP Morgan was a major cheerleader for the cause in NYC," said Jackie.

She joined the ALR when her sister Candy was diagnosed with lupus. "Finding out sent shockwaves through my family. We had never heard of lupus and suddenly my sister was very sick." Jackie shared. "I obviously wanted to champion my sister and jumped on the ALR bandwagon."

Although Marlene became involved in that walk without personally knowing anyone with the disease - that soon changed when her good friend Cassandra's sister Karen was diagnosed with lupus. And Marlene happened to be with Karen when she experienced a flare.

"After witnessing a lupus attack, I realized the enormity of the disease and what people deal with on a daily basis. That event changed my scope and my commitment," Marlene expressed.

Today these young women are incredible advocates for lupus awareness and ideal fundraisers for the ALR. The key to their success: A passion that is both genuine and unwavering.

Marlene is keen on supporting JP Morgan's efforts to back the ALR. She is involved with the kickoff and pep meetings to rally employees to not just walk but to invite their families and friends to participate.

Her strategy works: "I try to get participants to concentrate on casting a wide net. Not everyone can write a 15K check. They can perhaps write a $20 and a lot of these little checks add up to a big total." And to pique interest, Marlene worked the Jets connection to her advantage by getting a player to attend the kickoff. The payoff is big. In her first year working on the NY walk, Marlene made a big contribution - more than 400 JP Morgan employees lent a hand and participated in the walk.

Jackie takes a personal approach. As the event is close to her birthday, she invites friends to come to the kick-off event as part of her birthday celebration. She even bakes cupcakes for everyone she recruits to join JP Morgan's walk team!

"When I fundraise I can say that I raise money for my sister and that's a personal approach - but I also stress that all contributions go directly to fund research," said Jackie. Along the same lines, Marlene added: "Knowing that the ALR puts 100% towards research makes me more comfortable to say: All of your gift is going toward research... for the longevity of lives."

1.5 million

people in the U.S. have Lupus.

172 million

dollars committed to lupus research by the Lupus Research Alliance.

We're walking across the United States to raise awareness and funds for lupus research.


Show your support by visiting the Lupus Research Alliance online store. Discover the perfect gift, or prepare for a walk with our selection of apparel and accessories.

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