Leading the way to a cure

Lupus Research Update: 2011 Volume 3

Volume 3, 2011 - Online Edition | In This Issue

The Evolution of a Scientific Breakthrough >
Faces of Lupus: A Lupus Fighter with an Eye Toward the Future >
Exploring the Benefits of Planned Giving >
2011 ALR Grantees Announced >
Lupus News Corner >

Faces of Lupus: A Lupus Fighter with an Eye Toward the Future

Lee Resnick is an estate and succession planning professional. He's also a man on a mission — working to put an end to the suffering caused by lupus, and his reasons are clear — more research is needed to help his wife, Caryo, and others who have this disease.

That's why he helped found the Kansas City Walk with Us To Cure Lupus event for the ALR and why he has graciously offered to help us develop a flexible planned giving program to meet our donors' needs.

It was 23 years ago when Lee and Caryo met and fell in love. "We were in our junior year of college," he recalls. "And when Caryo told me she had Lupus, I immediately started to educate myself and learned of the challenges she and I would be facing together, and what it would take for her just to get through some days."

When Lee first learned about the ALR some six years ago, Caryo was very sick. She was experiencing immense pain and fighting through a multitude of symptoms. After consulting many doctors in Kansas City, they went to Baltimore where they met Dr. Michelle Petri — an ALR-funded researcher at Johns Hopkins. Dr. Petri told them Caryo's symptoms were something she had treated in other lupus patients and prescribed treatments that were new to Lee and Caryo.

During that trip to Johns Hopkins, Lee's mother mentioned reading that the owner of the New York Jets had started a lupus research group. Lee called the ALR's New York office the next day and was on the way to finding his mission.

"First and foremost," he explains looking back "the ALR was and is about finding a cure. And when I discovered that 100% of donations go directly to the most promising research... well, it was a huge selling point." So Lee and Caryo became donors and fundraisers to the ALR and have helped raise almost $50,000.

Now Lee is applying his professional skills to support the ALR and serve its donors. A planned gift can be arranged to benefit both the ALR and the donors. “The goal is to structure win-win situations,” Lee explained.

"As a spouse of someone who lives with lupus, many times you feel helpless," Lee told us. "The ALR provides an opportunity that allows me to also fight this disease."

1.5 million

people in the U.S. have Lupus.

172 million

dollars committed to lupus research by the Lupus Research Alliance.

We're walking across the United States to raise awareness and funds for lupus research.


Show your support by visiting the Lupus Research Alliance online store. Discover the perfect gift, or prepare for a walk with our selection of apparel and accessories.

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