Leading the way to a cure

Lupus Research Update: 2011 Volume 4

Volume 1, 2011 - Online Edition | In This Issue

Grasping an Understanding of Lupus in Children >
Pediatric Specialists offer Insights into Treating Lupus >
Faces of Lupus: A Mother’s Perspective >
New Technology Offers New Hope >
The ALR Announces New TIL Grantees >
Lupus News Corner >

Lupus News Corner

Reach Broader Audiences Through Podcasts

Voices of Lupus, our ALR Podcast Series on issues surrounding lupus has been a big hit with listeners. Provided in email updates and n our website, the podcasts are a unique opportunity to hear directly from ALR’s leaders and some of the most prominent lupus researchers of the world.

The topics have included a basic description of lupus and the most exciting and promising research into new treatments. Lupus in Childhood, our next podcast, will feature Dr. Ann Eberhard, pediatric rheumatologist.

Dr. Eberhard will discuss key concerns such as: Is it difficult to diagnose children and why? What’s different about lupus in children? Is treatment different? Why are more and more children being diagnosed? Have diagnostic methods substantially improved? Be sure to listen for the answers.

Hockey Fans Support Lupus

Chicago Blackhawks Score for ALR
— The Blackhawks made Lupus Awareness Hockey Day part of their February 18th pregame activities.

Festivities included a charity raffle, auctioning a Blackhawk jersey signed by Patrick Kane, and a brief ALR public service announcement (PSA) film. Several thousand dollars (and counting) were raised for research. The event allowed us to promote the June 18th Chicago Walk with Us To Cure Lupus.

Gentle Start to Chicago Wolves Game
— Gus, a young child with lupus dropped the first puck for the Wolves’ March 6th game with the Manitoba Moose — as part of Lupus Awareness Hockey Day at Allstate Arena.

ALR volunteers handed out Chicago Walk materials and collected donations. The Arena showed an ALR PSA film and launched our exciting Mobile Giving Fundraising Campaign.

Boston Bruins Skate for Lupus
— On March 29th the Boston Bruins hosted Lupus Awareness Hockey Night at TD Garden. The Bruins Foundation is partnering with ALR as presenting sponsors for the Boston Walk with Us To Cure Lupus and Nathan Horton of the Bruins is the 2011 Boston Walk Ambassador. With a great matchup against the champion Chicago Blackhawks, lupus research is the winner!

Sharing Information About Living With Lupus

The ALR held another of its series of Living With Lupusevents on March 3rd in New Brunswick, NJ, at the Robert Wood Johnson University Hospital.

Living With Lupus is just one of the ways we try to keep people with lupus fully informed about the complexities of the disease.

The topics discussed on March 3rd included

   • Understanding how lupus can affect the body
   • Strategies and lifestyle changes to improve well-being
   • Tips for caregivers who want to do their best
   • Updates on the latest results and advances in research

First New Lupus Drug in Over 50 Years!

The ALR has great news to share with our supporters and friends: The FDA has approved Benlysta — the first new lupus drug in over 50 years!

As one of the pioneering funders and supporters of B-cell research, the ALR commends Human Genome Sciences and GlaxoSmithKline for their enduring commitment and tireless research efforts to bring this new treatment to people with lupus. For everyone touched by this debilitating disease — people with lupus and their families, as well as lupus researchers around the world — we can celebrate a major advance in treatment options for lupus today.

1.5 million

people in the U.S. have Lupus.

172 million

dollars committed to lupus research by the Lupus Research Alliance.

We're walking across the United States to raise awareness and funds for lupus research.


Show your support by visiting the Lupus Research Alliance online store. Discover the perfect gift, or prepare for a walk with our selection of apparel and accessories.

Powered by Blackbaud
nonprofit software