Volume 3, 2010 - Online Edition | In This Issue
A Major Advance in Use of Steroids >
Faces of Lupus: CELEBRATING 10 YEARS >
The Role of Vitamin D in Lupus >
Registries Help Guide Lupus Research and Treatment >
Milestones in an Illustrious 10-Year History >
Lupus News Corner >
Faces of Lupus: CELEBRATING 10 YEARS
The ALR … from a Board Member’s perspective.
“Since its creation 10 years ago, the ALR has had a clear vision to end lupus. We have significantly increased public awareness of lupus and the funding of critical research. As a result, today we are the world’s largest private funder of lupus research. We have been instrumental in offering real opportunities for new breakthroughs. But make no mistake, we will not rest until our mission is complete.”
William Mulvihill, Board Member
A reason to keep up the fight … from a volunteer’s perspective.
“The ALR has opened up new pathways to important research, and that is why I am thrilled to be a volunteer. And I know that 100% of every dollar I raise through the New York City Walk with Us To Cure Lupus event goes directly to research.
I was diagnosed eight years ago — and seven years ago, I formed Team Turner. I walk and raise money — so far $130,000 — for all those who suffer with Lupus and need this cure more than I do. I walk for my daughter, Madeline, in hopes that if she is unlucky enough to also be affected by Lupus, there will be a cure.”
Matthew Niskanen, NYC volunteer
Our contributions … from a researcher’s perspective.
“Prior to the founding of the ALR, very little research was being done. The ALR dramatically transformed all that. ALR funding is critical to researchers like me, especially given the current economic climate. Members of my family have lupus, and none of us wants the next generations to struggle with this disease.”
Vicki Rubin Kelley, Ph.D., ALR funded researcher
The rewards of giving … from a co-chair of Walk with Us To Cure Lupus.
“I am so proud to be part of an organization on the cutting edge of lupus research. I was diagnosed with lupus 20 years ago, and in 2006 when asked to co-chair the inaugural Boca Raton, Florida, Walk with Us To Cure Lupus, I immediately said yes. My team, Walk With Wendi, started with 140 members and is still growing. The Walk has been the most rewarding public event in my life.
When I ask people to give and tell them that 100% will go to research, they are thrilled to have such a direct role in defeating lupus. And every time I read an ALR Update, I know that my time and energy is wisely spent — and that every dollar I raise brings us closer to a cure!”
Wendi Lipsich, Boca Raton volunteer