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Lupus Research Update: 2010 Volume 2

Volume 2, 2010 - Online Edition | In This Issue


The Next Phase in Advancing Genetic Science >
Brilliant Minds Search for Answers >
Uncovering New Paths to Treatment for Lupus Nephritis >
Faces of Lupus: A Volunteer Who has it All >
Lupus Experts Convene at International Congress >
Lupus News Corner >

Faces of Lupus: A Volunteer Who has it All

Lori Newman wears many hats — advocate ... volunteer ... fundraiser — and she wears all of them well. This would be an accomplishment for anyone, but Lori happens to be a young woman who suffers with lupus.

Her connection to the ALR began at a booth at a NYC street fair three years ago. “What got me hooked is the fact that 100% of every penny that the ALR raises goes directly to fund research,” she said, “so I decided then and there to get involved.” Lucky for ALR!

And today, Lori is one of the ALR’s best individual fundraisers. Since she first participated in our Walk with Us to Cure Lupus walkathon in 2007, Lori has raised an astounding amount of money — more than $25,000 — and all from modest donations.

What’s her secret? Lori’s approach to fundraising has style, charm, and a tremendous amount of wit.

She also has that rare form of social courage — the ability to approach and entertain a complete stranger. Lori energetically strikes up conversations with strangers at street fairs around New York City, quickly charms them, and makes them positively happy to give to lupus research.

Lori does engage the help of a sidekick. Juni (aka Naked) — her Yorkshire Terrier — is part of Lori’s latest fundraising performance. Here’s how it goes. Juni wears a “My name is Naked” T-shirt and Lori strikes up a conversation with a stranger. Then, in her inimitable way, she offers the person a chance to be photographed — walking Naked for charity!

Her creative approach is almost always good for a laugh — and a gift for the ALR. And this October 16th we’ll certainly be looking for Lori at the Walk with Us to Cure Lupus event in New York City. A proud New Yorker, Lori’s team is aptly named Hell’s Kitchen Kickin’ Lupus (HK2L).


1.5 million

people in the U.S. have Lupus.

90 million

dollars committed to lupus research by the Alliance for Lupus Research.


We're walking across the United States to raise awareness and funds for lupus research.

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