Volume 4, 2009 - Online Edition | In This Issue
Thinking Outside of Boundaries >
Message from the President >
The ALR Holds Key Industry Workshop on Lupus Clinical Trials >
Faces of Lupus — Thanks to Walkers on our 10th Anniversary >
Jets Kick Off Season of Hope >
Take Advantage of Tax Benefits — Make Your Year-End Gift Today! >
A "Driving" Force for Lupus Research >
Good News from Lupus Clinical Trials >
Faces of Lupus — Thanks to Walkers on our 10th Anniversary
ALR's Walk with Us to Cure Lupus participants are highly motivated, and compassionate individuals who have a steadfast determination to conquer lupus. Their efforts have resulted in nearly $15 million for ALR-funded research projects.
Many of them have been personally and profoundly affected by the disease and today we would like to introduce you to a few of these individuals.
"I walk on behalf of my late daughter Esachel (Che-Chi) who passed away when she was 19. For every walk I wear her pink sneakers. It makes me feel like she's there.
It's too late for Che-Chi but helping to raise awareness and funds could potentially help one of my family members ... grandkids ...even myself — if we were ever diagnosed with lupus."
Eunice Diaz, New York City
Her daughter was diagnosed when she was 12.
"Treatment has not changed much in the past 50 years, and many of the treatments can be as damaging as the disease itself! I believe that we can change all of that! That's why I am once again participating in the Walk with Us to Cure Lupus Walkathon in Detroit — in support of the Alliance for Lupus Research."
Erik Brigger, Detroit
Erik, 14, was diagnosed when he was just 11 years old.
""As an Advocate for the ALR, I have appeared on several local radio and television programs, telling my personal story and providing information about ALR. Recently, I gave a presentation to government employees and their Combined Federal Campaign program. It makes me feel good to see that so many people are interested in finding better treatments for lupus and that they also hope that one day a cure will be found."
Angie Hudnell, Washington DC
When Angie was diagnosed in 1974, very little was known about lupus.
"It is so exciting to see all the great advancements made by researchers that the ALR has funded. It keeps the drive and determination to raise money strong! I just hope that a cure can be found so others won't experience what I have endured for years."
Allison Rubin, Boca Raton
Allison was diagnosed close to 18 years ago while pregnant with twin boys.
"I walk because I have lupus and I don't want the next generation in my family to have to deal with this disease.
It is great to know that every penny that I donate or help to raise goes directly to making a difference in the lives of those with lupus."
Francine Halushka Katz, New Jersey
Francine was just 15 when she was diagnosed.