Leading the way to a cure

Lupus Research Update: 2009 Volume 1

Volume 1, 2009 - Online Edition | In This Issue

Message From The President >
Early Funding From the Alliance For Lupus Research Helps Small Firm Advance Research >
Activist Cathy Flanagan-Ross Donates “Cure Lupus Now” Trademark To The ALR >
Lupus Research Progress – ALR-Funded Researcher Awarded DoD Funding >
Lupus Research Progress – 2009 Grantees Represent Cutting Edge Research >
Who Gets Lupus? >
The Face of Lupus: Jalynn Skye Miller and Family >
National Limousine Association Supports the ALR >
ALR Proudly Displays BBB Wise Giving Alliance Seal >
ALR Advocacy Leads to Continued DoD Funding for Lupus Research >
Shoe News – Families Walking for a Cure: The Rineharts, Baltimore, MD, Saint Peter's University Hospital, and Singing for a Cure in Seattle >

The Face of Lupus: Jalynn Skye Miller and Family

My name is Monique McEachin and my daughter, Jalynn Skye Miller, was diagnosed with lupus when she was only four years old.

It was hard for all of us. Jalynn would come home from nursery school upset by the comments of other children about her weight gain (caused by taking Prednisone to treat her lupus) and the marks from lupus on her skin. She said, “Mommy, I want you to have lupus, not me.” I can’t tell you how many times I wished the same thing.

It helped our family a lot when we discovered the Alliance for Lupus Research (ALR). It’s given us so many ways to turn our pain and worry into positive action to make things better for everyone with lupus.

We’ve been participating in ALR’s New York Walk with Us to Cure Lupus for several years now. Jalynn loves the ALR Walk. She can’t believe all of the people are there just to help people like her who have lupus.

Jalynn is in 3rd grade now, and her lupus is in remission. She’s getting to run and play with other kids like never before. But she still has to visit her rheumatologist every 3-4 months, and who knows what the future will bring.

I truly believe that one day scientists, with the help of the ALR, will be able to find a cure. That day cannot come a moment too soon for Jalynn.

1.5 million

people in the U.S. have Lupus.

172 million

dollars committed to lupus research by the Lupus Research Alliance.

We're walking across the United States to raise awareness and funds for lupus research.


Show your support by visiting the Lupus Research Alliance online store. Discover the perfect gift, or prepare for a walk with our selection of apparel and accessories.

Powered by Blackbaud
nonprofit software