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Lupus Research Update: 2009 Volume 1

Volume 1, 2009 - Online Edition | In This Issue


Message From The President >
Early Funding From the Alliance For Lupus Research Helps Small Firm Advance Research >
Activist Cathy Flanagan-Ross Donates “Cure Lupus Now” Trademark To The ALR >
Lupus Research Progress – ALR-Funded Researcher Awarded DoD Funding >
Lupus Research Progress – 2009 Grantees Represent Cutting Edge Research >
Who Gets Lupus? >
The Face of Lupus: Jalynn Skye Miller and Family >
National Limousine Association Supports the ALR >
ALR Proudly Displays BBB Wise Giving Alliance Seal >
ALR Advocacy Leads to Continued DoD Funding for Lupus Research >
Shoe News – Families Walking for a Cure: The Rineharts, Baltimore, MD, Saint Peter's University Hospital, and Singing for a Cure in Seattle >

Shoe News

Families Walking for a Cure: The Rineharts, Baltimore, MD

Lexi RinehartYou know the old phrase…"the family that plays together, stays together?” Well, what about the family that walks for a cure together? The Rinehart family of Baltimore, Maryland is just one of hundreds of families who come together to help raise money to support the Alliance for Lupus Research (ALR) every year.

Beth Rinehart has lupus, and her five-yearold son Conner and his big sister Lexi have had to learn to adapt to their mother’s illness. But the whole family has come together to support Beth and raise awareness about lupus.

Beth, her husband Aaron, and her father Maynard Shepherd were instrumental in launching the Baltimore ALR Walk with Us to Cure Lupus. They have remained active in the walk every year. Aaron’s parents raise money at home in Tennessee, then travel to Baltimore to walk with the whole family.

And Lexi and Conner? They walk every inch of the route each year and have even donated toys to raise money to support the ALR at the family’s yard sale. Last year, Lexi was a featured speaker at the Baltimore ALR Walk’s kickoff luncheon and Walk Day. “She was only seven years old at the time,” says Beth. “She delivered a message of hope for everybody there. I was so proud of her.” We’re proud of her too, and of the entire Rinehart family team. Thank you to the Rineharts and the many families who Walk with Us to Cure Lupus.

Companies Walking for a Cure: Saint Peter’s University Hospital

Corporate support has become a vital element of our Walk With Us to Cure Lupus fundraising program. Often, corporate support grows with the involvement and leadership of dedicated ALR volunteers. One great example is Saint Peter’s University Hospital, who participated for the first time in the Central New Jersey Walk in 2008.

Long-time corporate supporter Steve Jones, President and CEO of Robert Wood Johnson University Hospital, asked Al Glover, President and CEO of Saint Peter’s, to co-chair the walk. Al Glover knew just who to ask to head up the Saint Peter’s team, Vice President and General Counsel Francine Katz. Katz has been a star volunteer for the Alliance for Lupus Research for many years, and her encouragement and leadership helped make Saint Peter’s involvement a huge success.

Nearly 200 spirited Saint Peter’s employees, friends and family members participated in the October 4, 2008 ALR Walk and raised over $35,000.

Singing for a Cure in Seattle

We love to hear about the creative ways our supporters raise money for lupus research. And we want to sing this idea from the rooftops – the Singing for a Cure event organized by Kawanna Perine- O’Neil last year in Seattle, Washington.

Kawanna’s “Team Koopie” has been a vital part of the Seattle ALR Walk with Us to Cure Lupus for several years. But last year Kawanna had another idea.

She organized Singing for a Cure, an event that showcased 15 vocal talents as a fundraiser for the ALR. More than 300 people attended the event and raised $1,500 for lupus research. Plus, Kawanna used the opportunity to inform more people about lupus and the work of the ALR.Kawanna Perine-O'Neil

Kawanna hopes to organize the second annual Singing for a Cure event in October 2009. And eventually? “I’d like to see it happen in other cities,” she says.

Thank you, Kawanna, and all of our volunteers and supporters who find creative ways to help the ALR fund lupus research to find a cure for lupus.


1.5 million

people in the U.S. have Lupus.

90 million

dollars committed to lupus research by the Alliance for Lupus Research.


We're walking across the United States to raise awareness and funds for lupus research.

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