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Lupus Research Update: 2008 Volume 3

Volume 3, 2008 - Online Edition | In This Issue


Message From The President >
ALR Awards Record Number of Research Grants >
Progress: Congress Proposes Increased NIH Funding >
Lupus Research Progress >
The Faces of Lupus: Laura and Neil Gever >
New York Jets Honor ALR Supporter and Volunteer Joseph Trunfio of Atlantic Health >
New Community Walks Raise Mega-Funds for Research >
Shoe News — ALR Walk Update >
ADVOCACY CORNER — Standing Up for Federal Lupus Research Dollars >
ADVOCACY CORNER — "Could I Have Lupus?" Awareness Campaign Launches >

Lupus Research Progress

Reporting back on ALR-funded research projects.

In this issue, we check in with Dr. Sam Lim at Emory University in Atlanta and Dr. Jane Salmon of the Hospital for Special Surgery in New York City.

Meet Dr. Jane Salmon

Dr. Jane SalmonWith funds from ALR, Dr. Salmon's research uncovered a possible link between a complement protein and pregnancy complications associated with lupus and/or antiphospholipid syndrome (APS). This finding led to Dr. Salmon receiving a $5.7 million grant from the NIH to move forward with human studies. The NIH grant has been renewed and Dr. Salmon's research study will now include 700 patients. Dr. Salmon's work is a good example of how initial ALR-funding can help scientists secure even larger government funded grants to expand their work. Thanks to you, Dr. Salmon and her colleagues may one day discover the way to reduce the high rate of pregnancy loss in women with lupus.

Meet Dr. Sam Lim

Dr. Sam LimALR awarded Dr. Lim a one-year Pilot Grant in 2007 to support his work with the Georgians Organized Against Lupus (GOAL) project. Taking advantage of the significant numbers of patients identified with lupus from the registry, GOAL's ultimate goal is to assemble and follow one of the largest ever groups of lupus patients for monitoring and research. In order to accomplish this, the one-year Pilot Grant focused on the feasibility of utilizing registry information to reach out to identified patients and enrolling them. Dr. Lim reports success. GOAL has developed an approved procedure to contact patients from the registry. It has already assembled a strong and growing cohort group of around 300 patients. Each patient is given the opportunity to receive educational information as well as consent to engage in research by regularly completing questionnaires and being informed of other research opportunities. This project is especially exciting because the patients on the Georgia Lupus Registry are coming from the most vulnerable communities for lupus — mostly African American women of lower economic status. The work is already revealing some of the hurdles that lead to higher risk for lupus and poor health outcomes in these vulnerable populations.


1.5 million

people in the U.S. have Lupus.

90 million

dollars committed to lupus research by the Alliance for Lupus Research.


We're walking across the United States to raise awareness and funds for lupus research.

Can't make it? Join our National Virtual Walk to participate anytime, anywhere.


Show your support by visiting the Alliance for Lupus Research online store. Discover the perfect gift, or prepare for a walk with our selection of apparel and accessories.

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