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ALR National Multi-cultural Outreach Task Force

Background

Lupus is a disease that disproportionately affects women more than men.  90% of people with lupus are women and people of African American and Hispanic/ Latino descent are affected more than others and have more severe symptoms than other racial groups.  With 1 in 250 African American women affected by lupus, the disease is an epidemic in the community.   People of Asian and Native American descent are also disproportionately affected by lupus.

The NEED

The Alliance for Lupus Research (ALR) seeks to improve its efforts to reach out to people in these major cultural heritage groups with messages of hope about lupus research, give the tools to understand more about the signs of lupus, and engage individuals in fundraising efforts to make a difference.  The ALR also hopes to increase appropriate and accurate diagnosis of people with lupus, by helping to inform a broader representation of people of color and various cultural heritage about lupus and its signs and symptoms. There are many people out there right now who are undiagnosed and confused about why they have symptoms and don’t know what’s wrong with them.

To learn more about how you can get involved with the ALR Multi-cultural Outreach Program, please view our Ambassador Overview One Sheet and Task Force Overview One Sheet.

Thank you to the inaugural Multi-cultural Outreach Task Force members

Learn more about the roles of the Task Force Members


Multicultural Outreach Task Force Members

Vicky Aguiar, NY

Yvonne Alvarado, NY 

Shanna Balcazar, IL 

Brenda Blackmon, Nashville, TN

Candy Brown, NJ 

Erica Buchanan, IN 

Heather Charles, MA

Angel Chen, NY  

Katherine Cho, NY 

Leah Crocker, Atlanta, GA

Tara Delgado, LA 

Carolyn Brown-Dancy, NJ 

Jacqueline Edwards, NJ 

Shanelle Gabrielle 

Kaamilah Gilyard, NY

Evanne Grate, San Francisco, CA 

Kiara Sherri Harris, Sacramento, CA

Dorothy Bennett Hoffman, IN

Angie Hudnell, DC

Lynne Scott Jackson, NY 

Kelly Dawn Kelly, Nashville, TN

Carmen Diaz-Malvido, NY

Judith Mills, NJ

Jackie Rincon, NY

Katerin Rodriguez, NJ

Marlene Ross, NY

Marlene Sanchez, LA 

Mary Sias, Houston, TX

Cheryl Ward, Oakland, CA

For More information please contact ambassadors@alr.org

The Alliance for Lupus Research thanks Eli Lilly and Genentech and Questcor for their generous support of this meeting and the work that comes through the gathering and expertise of this task force.


1.5 million

people in the U.S. have Lupus.

90 million

dollars committed to lupus research by the Alliance for Lupus Research.


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