Links
For the purpose of further investigation, the Alliance for Lupus Research provides links to other sites that may be of interest. The ALR does not monitor, substantiate or endorse the information offered on these sites. It is recommended that you review any information you get from searching on the Internet with your health care professional who is your primary resource to meet your individual medical needs
ALR Resources
Facebook
http://www.facebook.com/allianceforlupusresearch
MySpace
www.myspace.com/lupusresearch
YouTube
www.youtube.com/myalr
SLEGEN
www.slegen.org
The genetic makeup of an individual strongly influences the risk of developing systemic lupus erythematosus (SLE). The identification of genes that predispose an individual to SLE will lead to earlier and better diagnosis, better treatments, and possibly prevention.
Other Resources
Arthritis Foundation
www.arthritis.orgInformation on the prevention, diagnosis and treatment of lupus and various forms of arthritis.
About.com Rare/Orphan Disease Guide
lupus.about.com/cs/lupussle/index.htm
Lupus information, how-to’s, and links in an easy-to-read format.
American College of Rheumatology Home Page
www.rheumatology.org/index.asp
Listings of rheumatologists and a lupus fact sheet.
Centerwatch Clinical Trials Listing
www.centerwatch.com/patient/trials.html
Clinical Trials sponsored by government and industry.
Colorado HealthSite
www.coloradohealthsite.org/
To navigate to the Lupus section, choose Chronic Illnesses, and then choose Lupus. There is an active Forum.
CRISP database
crisp.cit.nih.gov
An NIH-maintained web site that allows people to search a database for all federally funded grants on a particular topic such as SLE.
DxLupus
www.DxLupus.org
Run by Rheuminations, Inc., DxLupus is a patient-focused website serving people with lupus and those who care for them...
Lupus Patients Understanding & Support
www.lupus-support.org.uk for free information
www.lupus-forums.org.uk for free support
A non-profit organization offering a unique service: free information and free psychological support. Our aim is to meet the needs of those affected by lupus and this includes researching into the psychological aspects and designing a "support" service which includes using the internet as a medium.
MEDLINEplus Health Information
medlineplus.nlm.nih.gov/
A service of the National Library of Medicine.
National Institute of Allergy and Infectious Diseases (NIAID)
www.niaid.nih.gov
U.S. government site offering information and free publications on autoimmunity.
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
www.nih.gov/niams
Read about current NIAMS supported lupus research and order free books and pamphlets.
National Institutes of Health (NIH)
www.nih.gov
The Federal focal point for medical research in the U.S.
Pregnancy Resources
www.utyx.com/pregnancy/
Pregnancy related news, books and web resources.
PubMed
www.ncbi.nlm.nih.gov/PubMed
PubMed, a service of the National Library of Medicine, includes over 14 million citations for biomedical articles back to the 1950's. These citations are from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.
The Lupus Site
www.uklupus.co.uk/The Lupus Site—from the UK.







